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IN MEMORY
What I’m Listening 2
Monthly Archives: April 2010
5 Ways my BLACKBERRY helps me manage my CFIDS/FMS
As anyone who is struggling with a chronic illness innately understands, dealing with the difficulties posed by said illness can be quite taxing, and sometimes, downright overwhelming … especially if memory or cognitive function is affected. Thus, when I finally received my ‘free’ Blackberry several weeks ago, little did I understand how my love affair with my Storm 2 would go way beyond ‘love at first sight!’ Who would have thought that this amazing, little device could be a solution …
Posted in Featured
Tagged 4 walls and a view, Blackberry, chronic fatigue syndrome, Fibromyalgia, personal, Storm 2
18 Comments
My butt?
I’m assuming most of my readers have never sighted a gun, so I will explain what that means. In order to shoot your target – and hit it – if your are using a scope, you have to sight it, which basically means you have to calibrate it so that the bullet will go straight. I had to learn how to do this in basic training and learned real quick what happens when…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, fatigue, Fibromyalgia, pain
4 Comments
I’ve waited for a lifetime for this moment
When the fiasco with my laptop happened, the company wiped out my budget and my checkbook. Needless to say, trying to remember everything that was in my checkbook was impossible and I forgot three very important payments. And I got to pay dearly for that oversight. $295.05 to be exact! What’s a girl gonna do? I spent about 10 hours on Sunday rebuilding my budget. It took me several years to develop a budget in excel that makes sense in …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, personal, wedding
10 Comments
Expressive simplicty in Black and White
They say a picture is worth a thousands words. Today, I don’t feel like conveying my heart with words … well, not written words, anyway. I have been playing with my creative side today. You see, I have spent the whole weekend in bed as I ‘hit the wall’ as Joleen so eloquently puts it! I had a really bad flare-up with the FMS this week but today it started easing and I found myself in an introspective, melancholy mood. …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "black and white", 4 walls and a view, personal, photography
31 Comments
THAT would be a great day…
I so wanted to write a pithy post for today, but my body has other plans. The Fibromyalgia has been acting up all week. Today it has been really bad. My legs feel like the insides are frozen. They are aching so bad I can’t stand myself. Add to that my arms and my right hip…Ouch! I don’t know if I am the only one here with this struggle, but…
Choosing to stand…
I just received word that my father is out of surgery and is stable. Thank you God! His vital signs are all good. The nurse told me she was currently trying to get his pain level under control, but again everything else looked good post surgery. Unfortunately, not all the news was good…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, cancer, dad, lungs, personal
18 Comments
Hope
I had this interesting epiphany recently. This past week, the FMS has been really bad – about a 7 or 8 out of 10. It isn’t so much the straight, sharp kind of pain, but that achy, stiffness kind of pain. It has been widespread so I don’t have anywhere on my body that isn’t currently hurting. I can chalk this flare-up to the wonderful, rainy weather we are having here in Tulsa! Anyway…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, Fibromyalgia, hope
10 Comments
The tension line: Do I push or pace?
One of the most challenging aspects of living with CFIDS/ME/FMS, for me personally, is the daily walking out of this tenuous tension line I find myself constantly straddling. I call it the, “do I pace or do I push” question. Basically, throughout the day, every day, I have to ask myself, Do I push or do I pace? Everything I end up…
This is profoundly disturbing!
After twenty years of living with the incredible challenges of CFIDS and FMS, I have been, long, looking forward to a day when my illness would be recognized as the serious illness that it is. That is why I have been keeping an eye on a trend that seems to be heading our way. According to the International Association of CFS and ME…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, ACFS/ME, APA, chronic fatigue syndrome, CSSD, personal, pychiatric
12 Comments
AMERICAN
The quietness of the early morning hour surrounds me like a warm blanket. The coolness of the breeze whispers over my bare arms as I inhale the pungent odor of my morning coffee brewing silently in the darkness. Even the birds are conspicuously silent. The city lights are dancing along the water’s edge reminding me of the beauty that surrounds my 4 walls. I am in a quiet, contemplative place today as I meditate on what this day means to …
Posted in World News
Tagged 4 walls and a view, chronic fatigue syndrome, personal, Tea Party, Tulsa
15 Comments
On the other side
I have finally come out on the other side of my four month crash. It is a really great reminder for me to treasure any and all moments because I never truly know what is coming around the corner. I have really been working hard to enjoy every single moment of every day. That sounds like it would be such an easy thing, but I have been dealing with incredible stresses in addition to the laptop fiasco. My father…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, personal, pugs, stress
16 Comments
Getting back up and on the horse
Well, I finally got my laptop back, but what a mess! Ugh. After a week had passed I went into the computer repair store to find out what was going on only to discover that nothing had been done. Uh huh… I let it slide though, because the guy told me they had to wait for parts to come in to fix the broken hinge on my laptop. Sounded reasonable to me. I was assured it would be good to …
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