Monthly Archives: June 2010
Bad Mis-step and another Decision
Monday night a friend of mine came by and graciously took me to the library so I could get some books, videos and a book on CD (my first) and on our way back we stopped by QuikTrip which is an awesome gas station here in the south. Anyway, I was going to grab a hot dog because I was hungry when a women decided she needed it more! So…
15 LOVELY CFIDS, M.E., Lyme, and FMS blogs
I have been very remiss about a wonderful surprise I received on June 17th. My reason for not doing this earlier wasn’t just because I wasn’t feeling good or being pulled into a myriad of directions. Actually I did try to do it right after WordPress 3.0 came out and I uploaded it. Unfortunately, the new update caused my image plugin to break and I had to wait until the update came before I could do this justice. Now that …
Spiders, Sheilding and Suffering
I can’t say that the past two days have been “better.” My nervous system is so out of whack I think you could plug me into the Statue of Liberty and I could light up all of New York with all the “electrical” wiry-ness going on inside of me. I do not like feeling like this. I feel like I could even have an argument with myself! I’ve been thinking a lot today about…
Down Day to Sheild and my toe!
I decided that I would take today (Thursday) as a down day. I’m shutting off the phones, computer, everything and taking it really quiet and easy. I have…
Learning to SHIELD my CENTRAL NERVOUS SYSTEM
[Written last night - 6/22] Today has been a really challenging day for me. Since I got up today I have been edgy, snarky, grumpy, and wired – just completely frazzled. I can’t even begin to explain to you why. I don’t know. My body just feels like it is being torn in a multitude of directions and I just can’t seem to find my center today. Heck, I’m not even sure I know what my center is today! It’s …
A FAIR Name
This weekend, I came across this information via my 4Walls and A View Twitter feed. This campaign totally intrigued me because I can’t think of one (1) person with this illness who likes the name. I have tried several times throughout these past 20 years, through a myriad of campaigns, to help get the name of this illness changed but to no avail.
You KNOW you have been in bed too long WHEN
I have had these popping into my head today and just couldn’t resist! So…
When are you?
For as long as I can remember, people of all walks of life, and for a myriad of reasons, have asked me varying versions of the When are you question. When I was young, it was usually When are you going to grow up? or some such question. As I got older, the question became more personal and pointed. When are you going to get a job? When are you going to finish school? When are you going to find …
“Dominique’s Corner”
Is it already Friday? Seven (7) days in bed. I’m starting to get my days confused. It’s almost midnight here in Tulsa and I should be sleeping but I suddenly got hit with muscle spasms in my back and this odd muscle movement in my right leg in which the muscle just wants to keep jumping around. In addition, the restless legs kicked in again. It must be so odd for someone not familiar with these symptoms to watch this. …
What is the NUMBER in the NAME of this blog?
Weird title, huh? You’re probably wondering what gives?! Well, I have had it up to my hairline with spammers. Last week I had 300 spam messages in my comment section on ONE day that I had to delete one at a time. Today, I had 60! Enough is enough. So I have added…
I am BLESSED going IN and coming OUT
I guess sometimes I do look sick. My health is spiraling downward. Today was extremely hard. I actually called a friend and asked for help which is something I don’t often do. My throat is so sore that I thought ice cream would help. Plus I’ve lost my appetite. The thought of eating is just too tiring. All my lymph nodes are now painful (even the pelvis ones), I have serious ringing in my ears, fatigue is now at a …
CFIDS and the STRESSES of LIFE
This past week or so has been incredibly challenging for me physically, mentally and emotionally. I have chosen not to write about this period as I didn’t really want to get into the details of the stress producing situation. However, this morning, I received information on two (2) fronts that sent me into overload! As someone who lives with a chronic illness, stress can have a devastating affect on my body. And for me, today, my body was sent over …
Our ILLNESS is invisible, but WE are not
I know, intimately, how these illnesses affect my life every day. I live it every moment of every day. I suffer from its devastating effects every time it whimsically determines that today is the day it will knock me to my knees. I endure its relentless attacks over and over and have done so for over 20 years. I grow frustrated some days as to how people without either of these illnesses struggle for the smallest nugget of understanding. I …
Invisible Awareness
Stephen Covey once said, “I am personally convinced that one person can be a change catalyst, a “transformer” in any situation, any organization. Such an individual is yeast that can leaven an entire loaf. It requires vision, initiative, patience, respect, persistence, courage, and faith to be a transforming leader.” I have read a lot of blogs since I started my own blog on January 10th of this year. I have often been struck by…
After all these years, still trying to adjust to being ‘benched’
I knew in my gut I shouldn’t do it. I knew it was a bad fit for me. But I wanted to help out a friend. I wanted to bless her in a way that her life could become more of what she was hoping and dreaming of. But even in the midst of it, I was in a turmoil. What is it about being a Type A personality that makes me want to do it all, even when I …
He knows!
He knew. He KNEW! I was absolutely floored when I met my civilian dentist/surgeon today. He knew what CFIDS and FMS were! He KNEW! Ha! Wow! In addition, he explained Orthostatic Intolerance to me! Can you believe that! He even explained why so many doctors look at me like I have two (2) heads when I mention I have it. He said that most doctors have never witnessed an OI episode before. So when they see an episode, they assume …
Dekker, Geese, Cotton and a Birthday
I thought I had updated everyone on this last weeks many challenges but it appears I … forgot! Imagine that! I no longer have a mold problem. As a matter fact, my letter was responded to within approximately 12 hours. I was happily stunned! That also is a huge bonus for you as well as I now have had SEVERAL showers! LOL! I also have found something very important to me this past weekend …
the Art of Letting Go: Part Two
If you haven’t noticed, this week’s posts are the result of many weeks of introspection, analysis, and processing. It’s as if everything is suddenly coming together all at once. Amazing how that happens! On May 7th, I read a post on Renee’s blog, Renee’s Reflections, about her struggle with surrendering and it has been haunting me ever since! [In a good way, Renee! ] As a result I have had to confront the idea of surrendering with the new parameters …
Lost 30 pounds by making 6 switches
On January 1st, of this year, I made a decision to no longer make New Year resolutions. I have come to the place that, for me personally, these types of commitments or contracts, if you will, are more negative producing than naught. However, I had a goal I wanted to work on so I needed to determine how I would complete it. The first thing I knew I needed to do was to figure out what I would not do. …
The Rubber Band Theory
This weekend I received the delivery of my two (2) veggie/fruit bags from Natural Farms, the co-op I joined earlier in this year. As I was putting them away, I reached down and took the thick rubber band off of one of the veggies. As I held it in my hand, it suddenly spoke to me. Well, not literally, but it did create this innate understanding deep within me. Interestingly, an issue I have been pondering and struggling with … …
























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