He knew. He KNEW! I was absolutely floored when I met my civilian dentist/surgeon today. He knew what CFIDS and FMS were! He KNEW! Ha! Wow!
In addition, he explained Orthostatic Intolerance to me! Can you believe that! He even explained why so many doctors look at me like I have two (2) heads when I mention I have it. He said that most doctors have never witnessed an OI episode before. So when they see an episode, they assume its a seizure.
But wait till you hear what else he told me..
Ha ha. I told him I would give him credit on my blog for this one! LOL! He said going to the bathroom can bring on an Orthostatic Intolerance episode! I was like, what? Can you believe that!? He was telling me that is why people fall and hit their heads in the bathroom! Many of them have just had an OI episode! Who knew!? He even went into great detail to explain why but I won’t burden you with those details! 
He then asked me when I have my episodes if I shake and my eyes roll in my head. I’m nodding my head in absolute delight. He knows!
Wow…it was so nice to have a doctor that understands and gets it. I cannot remember the last doctor who did!
As far as my surgery, we decided sedation will be the best scenario for me, so his office assistants are going to try to convince the VA that I need to be sedate for health reasons. He said they are successful more often than not. So I am praying that I am one of the ‘more often than nots’! 
As far as recovery, he informed that because of the type of sedation medication they use and the fact that I have OI, I need to have someone with me at all times the day of the surgery because there is a high potential the sedation medication will make the OI even worse. So I can’t go anywhere alone, nor can I be alone at all in my apartment the day of the surgery.
Also, my recovery time will probably be a week or so. That unfortunately, I’m used to.
As far as to when I will have my surgery depends on whether or not we can get the VA to pay for the sedation. If they agree, it will be soon. If not, I will have to wait until October to get it done since I will have to pay for it out of my own pocket. The Dentist was confident that it would not be a problem for me to wait as my tooth and gum area are looking great.
So, all in all, on a scale of 1 out of 10 (10 being best) this was a 10!
Again, what a difference to have a understanding, caring and knowledgeable dentist/surgeon. Love that.
P. S. I just got word from Ayo that the CFIDS Bumper Edition magazine is out! If you would like to see the special CFIDS Bumper Edition that Life Skills Magazine did for us, you will need to subscribe to Ayo’s blog, Discovering Purpose.
Determined to continue forward,
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I am so glad that your dentist/surgeon is so aware…What an answer to prayer that is!!! We will pray now for the sedation okay to come through and God’s timing in it all.
Renee´s last [type] ..Let The Herxing End!
Renee – Thank you!
Hey sweets…. I have had severe issues with Orthostatic Intolerance actually! I am so surprised that to even hear the term from someone else… I have something called neuromediated Syncope… in layman’s terms I cannot control my blood pressure very well. I can lose my blood pressure in my upper extremities and it causes my heart rate to go up… so I pump dry, faint, and once I hit the floor (or whatever I else I hit on the way down) it resolves itself… I cannot TELL you how many times I have fainted in the bathroom… I have broken bones falling into the tub and toilet. I also have seizures though…
I am SO glad you found a caring and compassionate dentist… and I know that your surgery will be just fine… I am keeping you in my prayers.
Love ya girlie!
Jolene´s last [type] ..My FIRST Published Article!!
Jolene – You know something. Your ‘hey sweets’ is really starting to grow on me. Makes me smile every time I see it!
This dentist also used the neuromediated syncope when I was there too. That was the term that he used to explain exactly what you just explained. He was a little surprised to find that it is a side affect for those of us CFIDS.
Thank you for your prayers.
That is amazing that a dentist much less a doctor knew about cfids and oi! It’s interesting to me what he said about people passing out while going to the bathroom. I’ve wondered why there have been a number of occasions that I’ve almost passed out there. I’ve been putting off going to the dentist but reading your post has given me some hope. I’ll keep you in my prayers that the surgery and sedation will go smoothly and that you will heal quickly…
Terri – Thanks for dropping by! Thank you so much for your prayers! I was stunned by the bathroom thing too. I had someone tell me today thought that they have broken bones by falling from an OI episode, so….