"Laura Lipscombe"

April 2012 ME Story: Laura Lipscombe

I almost missed this month's story.  I had so much going on I didn't realize today is the 12th of the month and a new Becoming VISIBLE 4ME story is up. That would have been a real shame, because this month's story, by Laura Lipscombe, is really impacting. Many of the feelings and situations...

4Walls and AView

Coming to terms with loss and reality

For the past few days I have been sleeping, resting, and sleeping!  :-)   I have been so utterly exhausted I haven’t been able to do much else.

Monday I got out of my ’4Walls’ and went with one of my friends to Tulsa.  We decided to hit one of the malls after the errands were all done.  It is amazing to me how the smallest thing can suddenly stop me dead in my tracks.

I was…

at Dillard’s (I think) and I saw this key chain with the Eiffel Tower on it and was thinking about how I have always wanted a key chain of the Eiffel Tower.  Then I suddenly  realized that I had no keys to put on the key chain because I had no ‘home.’  Talk about a reality check.  Wow!

At another moment in time, I was thinking of how it would be Fall when I return to Tulsa after the wedding and it would be blue jean season again, which I love.  Again, I suddenly realized that I no longer owned a pair of blue jeans.  Furthermore, I remembered I had no Fall or Winter clothes!  Holy Cow!   That sent me reeling!

I had another situation where I reached for my Bible only to again remember that I no longer owned one of those either.  This one has been most challenging because, after all these years of searching, I had finally found a Bible that fit me.  The New American Standard Version that was laid out by date.  One more thing I have to replace.  (head shake).

I can’t explain the emotion that goes through me at that moment, but it’s as if there is this void that I know logically is there but my heart just hasn’t quite grasped it yet.  And so when I suddenly come face to face with the void, it’s quite shocking and saddening.

It was happening so often over the weekend that it was really getting me down.  So I decided I needed to make a plan and then start working the plan if for no other reason than to give myself something to focus on other than all the loss I am enduring.

That actually helped a lot.  But it’s still so startling when I am confronted with yet another ‘thing’ that I have lost.   And most of these are possessions.  I’m not even looking at the losses I may be facing physically.

To be quite honest, I don’t think I am at a place right now, where I can even contemplate the possibility that the neurological damage may be permanent.  I have come to terms with the damage to the my lungs being permanent.  But I just can’t accept that the neurological may be something I have to live with for the rest of my life.   I just can’t.  Not yet.

I have to face today and not focus on what may or may not become my reality tomorrow.  Somehow, it makes today easier to walk out.  I can even deal with the funny walk, the tipping over, losing my balance, etc, if I think of it as a temporary situation.  I think anymore than that, will push me over the edge.

I guess in a way, this is my line in the sand for this moment in time.  It is what I can handle emotionally without completely falling apart.  It is what I am capable of handling – at least for now.

When I look at how I am struggling cognitively, that brings me to tears.  Even typing this post has become such a struggle.  I just can’t seem to get my brain to function properly.  Everything is all jumbled up.

Every time I proof my post, I find so many mistakes in it.  Sometimes, I struggle to figure out what I was trying to say.

The manner I am struggling with in getting my thoughts down in my post, I have moments where I have the same problem when speaking.  Many times, I find myself stuttering as if the thought is just stuck and won’t come out.  Other times, I just don’t remember at all.

A little unnerving to say the least.  But I have hope that the detoxing I have started will help my brain recover.

I’m also wondering if perhaps some of my gait problems might be due to an injury to my back when the chemicals overtook me and I fell unconscious on the floor.  I’m actually going to see my chiropractor to see if that is a possibility.

The dizziness and shaking are still continuing.  However, on the positive side, they aren’t getting worse, so that is a good thing.

Some of my readers have reminded to allow the sadness when it comes.  I am doing that.  I am embracing my grief however and whenever it reveals itself.  I know that my emotional recovery from this unbelievable situation will only come if I open myself up and allow myself to feel whatever it is that I need to feel at any given moment.

I’m also talking it out with my friends which helps as well.   All in all, I’m doing pretty well, I think.  It’s not the way I had hoped my summer would turn out, but it’s not a complete wash.  As a matter-of-fact, I am learning quite a bit.  There is always a lesson in everything I go through.

I will share some of the recent lessons I have learned in another post as well as some good news.  For now, I am comforted just understanding that I am coming to terms with the reality of my situation and my loss.

Determined to continue forward,

If you enjoyed this post, make sure you subscribe to my RSS feed!

About Dominique

Dominique is a part-time writer and blogger. She currently writes about the challenges of living with Myalgic Encephalomyelitis (ME) and Fibromyalgia (FMS) which she has now lived with since December 1992. She also has her own column, which is published in Life Skills Magazine (LSM) in England. In Feb. 2011, she founded, Becoming VISIBLE 4ME, an organization designed to help raise awareness about the reality of living with ME – 1Story@aTime. Dominique has a BS in Drama with a minor in English Lit. ***When not writing, she spends time working on a variety of creative projects, playing scrabble, reading audio books, and looking forward to spending time with her daughter and grand-daughter as often as possible.
This entry was posted in Myalgic Encephalomyelitis (ME) and tagged , , , , , , , . Bookmark the permalink.
Comments
  • mo July 20, 2010 at 1:16 am

    Dominique, This post sort of jarred my memory and made me remember something from the past. Twenty or so years ago a tornado went through a town just south of us. My cousin lived in that town, and thankfully they were not home during the worst of it. When he went to check on his home…it was gone. Everything. Just a cement slab. That is how your life is now. Every possession you had is gone, your clothes, your furniture, you beloved bible. After you daughter’s wedding your new life will begin to unfold before your eyes, and I pray that your new life will be comfortable and safe. Maybe your body just doesn’t know how to deal with clean air to breathe, give it time and hopefully all these terrible things you are experiencing will just go away slowly.
    Thinking of you everyday my Friend.
    Maureen
    mo´s last [type] ..Pajama Party with Mom

    • Dominique July 20, 2010 at 2:05 am

      Mo – I’m so sorry your cousin has to go through that! Yes, that cement slab is kinda how it feels sometimes. And yes, after my daughter’s wedding I will start over…. :-)

  • Rosemary Lee July 20, 2010 at 1:30 am

    You have so much to come to terms with my friend. I cannot imagine it. Do you have my email address? If so, email me an address where you’re staying. I want to send you something……..

    Hugs,
    Rosemary
    Rosemary Lee´s last [type] ..UPDATE VIDEO FROM STANFORD

  • Nancy July 20, 2010 at 1:48 am

    Dominique, you are never far from my thoughts. You have been and are going through so much, all at once. I have faith that you will make it through, and good things will start to unfold for you. Please be gentle with yourself, and cntinue to take it one day at a time.

    Sending you lots of love and a ton of gentle hugs, my dear friend!

    • Dominique July 20, 2010 at 2:06 am

      Nancy – Thank you for the love and thoughts! I feel like I have known you forever! :-)

  • Toni Bernhard July 20, 2010 at 10:07 am

    You are going through so much, Dominique. It’s so inspiring that you still write these wonderful posts (they may be hard for you to write but they’re so articulate and straight from the heart that they’re always so moving). Again, I’m glad you have friends around you for support. And, of course, your cyberspace friends are here too.

    I can’t imagine losing all of my possessions, both the material ones and the spiritual ones (like your Bible). Hang in there. We’re with you.

    • Dominique July 20, 2010 at 11:25 am

      Toni – Thank you. I am very thankful for each and everyone of my cyber friends. You all have been an incredible blessing to me. Congratulations on your interview! I’m sure you will do a great job!

  • ayo July 20, 2010 at 1:20 pm

    hello dominique,
    you are going through so much right now and i dumbfounded at your courage. i’m joining nancy to say my thoughts are always with you. This statement you made just got to me ‘I have to face today and not focus on what may or may not become my reality tomorrow’ There was a programme on the radio at 11am and all i kept thinking was if these guys read your blog or met you, their perception of losing hope will change because you are a testimony.
    please look out for my email and take care of yourself.

    • Dominique July 20, 2010 at 2:21 pm

      ayo – Thank you. I really appreciate it. Was it a program in the UK? I will and I will. :-)

  • Patricia Stotler July 20, 2010 at 3:00 pm

    Dear Dominique May the Lord comfort your broken heart and I pray
    the trauma to your neurological system will heal. Each time a new thing
    comes to mind that you don’t have anymore I pray you will believe it
    can and will be replaced and become part of what makes a place a home. The wedding is a new beginning for your daughter
    and may it be a new beginning for you. I will be so happy to hear your
    news as this new chapter unfolds — finding a new home, furnishing it, and
    replacing possessions. As you bring new things into your new home I hope
    each one will bring with it a good memory – gifts from friends–and may
    your new home be a place of refuge and safety and comfort. God bless and
    keep you as you continue to cope with and move through not only a physical
    trauma but an emotional trauma. Your faith will carry you forward – that
    I have absolutely nothing but confidence for you.

    • Dominique July 20, 2010 at 3:42 pm

      Patricia – Thank you for such a beautiful, visual picture for me to hold on to! :-)

  • Sue Jackson July 20, 2010 at 3:37 pm

    Dominique – My heart goes out to you. I can’t even imagine dealing with the losses you’re dealing with (well, maybe if I think back to that first year of being sick…but at least I still had my possessions). So sorry for all you’ve been going through.

    As for the mall, Ken and I always found it exhausting even before I had CFS! Ken used to joke about its mysterious energy-zapping powers. We hadn’t been in years until the kids and I went last week to meet up with the other moms and kids with CFS.

    Oh, that reminds me!! So sorry I forgot to tell you this earlier….one of the moms at our lunch last week also reads your blog, and she knew we had met in person recently. She asked me to tell you that the shaking episodes are probably OI. One of her sons had the exact same experience. In fact, when they did the tilt table test onhim, to test for OI, they also hooked him up to an EEG because they weren’t sure if the shaking meant he was also having seizures (nope, just OI). And here you mention shaking AND dizziness – almost certainly OI.

    So, suck up LOTS of salt! Guzzle a big V-8 juice the next time you’re feeling bad. or try preventing these episodes with lots of salt and fluids all day long. I hope it helps –

    Sue
    Sue Jackson´s last [type] ..The State of Me now an e-book!

    • Dominique July 20, 2010 at 3:46 pm

      Sue – I told the VA about the OI while I was in the hospital and they did a quick 5 minute exam on the side of my bed and told me I didn’t have OI (uh huh). Anyway, when I went home they told me to stop all salt. As I’m not in my own home at this time, it is a little hard to keep up with the salt and what not.

      I’m not convinced that the shaking is the OI as it started right after the chemical exposure but it is well worth checking out. Probably not at the VA however.

      Thanks for the head up. Also, tell your friend I said thank you as well. :-)

  • Laurel July 20, 2010 at 5:03 pm

    Dominique… You’ve been through so much. My heart goes out to you, with hopes of things improving soon. Hugs to you.
    Laurel´s last [type] ..In Fifteen Years

  • Viv July 20, 2010 at 9:45 pm

    Hello Dominique,

    I am thinking of you and my prayers are with you. We have changed and will continue to change, so we grieve, wish, dream, and continue to dream. Hold on to your dreams.

    God Bless and soft hugs your way:)
    Viv´s last [type] ..What did I do

  • CommentLuv badge

    Threaded commenting powered by Spectacu.la code.

Back My Book Theme Author: Website Themes for Writers © 2012

© 2010-2012 4Walls and A View All Rights Reserved -- Copyright notice by Blog Copyright