It has been said that,
all things that go up must eventually come down.
Unfortunately, that proves true with CFIDS and FMS more oft than not.
Today, I have been feeling pretty bad. If I didn’t know better…
I would think I came home from the hospital with one, bad stomach bug. I am drinking this all natural green drink trying to give my intestines and stomach a break as well as sipping on Coke.
In addition, today I am utterly wiped out. I feel like my body is moving around the house, but the rest of me is lagging way behind. Sometimes, I think if I look behind me I will catch myself curled up in a ball, fast asleep.
I have had several people comment on how I should take it easy but the reality is that pacing is a little challenging during these last 11 days before the wedding and living in someone else home. I can’t really pace according to my needs as I need to be considerate and accommodate my room-mates schedules and availability as well.
I have almost everything taken care of for the wedding except for the last $300 I need for the day of the wedding. I’m really excited about the ‘big’ day, but on the other hand, my body is so ready for a break.
In actuality, I think the fact that I have to move into the apartment a month early is probably a good thing. I can just crash out for as long as I need – maybe for a month or so – until I can recover from all the stress and pushing I have had to do these past few months.
It is amazing to me that we are already on the second half of this year. Yikes! Where in the world did it go! I’m not sure – at this point – that I can say this year has been a good one with all the mold problems and the toxic chemical exposure, but the end of the year definitely appears to have changed course and is now headed towards a much better view!
As a side issue, my gait now seems to be okay for the most part except when I am tired (funny huh! – like when am I not tired! ha ha) but my speech and memory problems are still readily apparent.
At the tour of the Mayo 420 Building the other day, several times I got lost in the conversation. I even asked questions only to realize that what I thought had been said, hadn’t. A little embarrassing but not something I can’t deal with.
The memory issues are frustrating. It’s like someone took my brain, shook it and then threw it on the floor. My brain is standing there looking at the pieces with no clue how to put them back into a coherent form. I know that this is part of the reason for my stuttering. There are times that the stuttering is worse than others but when it happens it’s as if my brain and mouth just get stuck. I eventually am able to move on after a few seconds but it is a really odd experience since this is something I have never experienced in my life – ever.
On the asthma end, since learning how to properly use my inhalers, as well as, adding some new medication, things are going better. We have also turned down the air as it turned out that hot air was a pre-cursor to breathing problems.
In addition, I put the” pre-paring with the emergency inhaler the day before I go out” to a test (I now have to prepare the day before on hot or humid days) and was able to make it for about 4 hours before I started having problems. That is a good improvment.
Basically, I have to use my emergency inhaler every 4-6 hours for 24 hours prior to going outside in the heat or humidity. I wasn’t really sure if it would work, but I did okay when I tried it.
At church last night, the Pastor and his wife were reminding us how life isn’t fair. Boy do I understand that statement. I know for me personally, that was an incredible ‘ah hah’ moment when I finally got it.
I have come to understand over time that my journey isn’t about fairness as much as it is about how I choose to deal with whatever situation I am confronted with. I have also learned that trying to respond instead of reacting to the situation is paramount to a faster, steadier, resolution.
You know…life isn’t fair. But whoever said life gets to dictate how my life will turn out? I sure didn’t. I have no intention to lay down and let life and challenging circumstances run over me. Nope! I intend to push back, fight back, and win back – EVERY TIME~!
Determined to continue forward,

























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“I intend to push back, fight back, and win back – EVERY TIME~!”: I’m certain you will win! Good luck with getting everything in place, including the money, for you and your daughter’s big day! I hope you will share some pictures of the trip.
May today be full of more laughter than tears.
phylor´s last [type] ..i am a spoonie photo contest II
phylor – I will be posting as much as I can throughout my visit back East and will be including as many photos as I can. I have no doubt I will be taking many, many photographs!
I love the analogy about walking and expecting to turn around and find yourself curled up in a ball asleep. I’m feeling a bit similar today myself.
I know there is alot going on and it’s hard to find time to make sure you are resting properly. I’m also thrilled you are getting in your apartment sooner, so that you can relax and crash as needed.
Sometimes, we just HAVE to be there for our families and I completely understand (one mother to the other) that your daughter’s wedding is definately in that category. I know she will be beautiful and it will be a wonderful day for you.
Dawn´s last [type] ..Crash and Burn
Dawn – Thank you! Yes, a daughter’s wedding is one of those moments in time you just cannot forgo! Besides, it is one that I have been looking forward to for a long time!
Hi Dominique — Just wanted to thank you for stopping by my blog yesterday & saying hi. Yes, it’s been too long since I’ve written; not been well, and for me, that’s the first thing that goes. Have a new piece out in SN&R tho, that came out yesterday… http://www.newsreview.com (“No deal” re: cash for clunkers program — the downside)… so at least I’ve been reporting/writing there. Got to get back to my blog tho!// Finally getting a car this wknd!! So that’s a godsend!!! Going up north (CA) to get it. Dodge Neon 2005, low-miles…
Really a God thing how this was put together. // Loved your last piece…your indefatigueable (sp) spirit is an inspiration.
Stay your wonderful self,
Amy
Amy Yannello´s last [type] ..Lovely Blogs You Should Be Reading
Amy – Yes! Thank God for the car! I know you needed one ! Thanks! I hope the trip to get the Dodge is safe and fun!
I also hope you are feeling better soon. Going to read you article now!
I’m so sorry things have to be so difficult and with the approaching wedding. I will
pray for you. Thank you for your winning spirit. Today life threw some lemons
to me. I felt some stress but I said such is life and then I read your post.
Lucy has a dermoid cyst (an embryological defect) As it develops further
hair grows out of it. A piece of skin is growing in her cornea and it has hair follicles.
I saw a photo of an eye with a “beard” of hair growing out of the corner of the
eye. The vet said in his 35 years he has seen it only 3 times and all in dauchunds.
The word surgery scares me – $$$$!!!! But I got home too late to call the
opthamologist referrals to check on the cost. Such is life. I had to recruit
a ride from a neighbor to get to the clinic I can afford and Praise the Lord
that I had this help. Dominique know I will be praying daily for all that
going to the wedding entails. My heart goes out to you. I so understand
you wanting to be settled in an apt and be able to live on your own schedule
and recover from all that has been happening to you for too long. I wish
I could give you a gentle hug. Please know how much I care about you.
I consider you a friend who is traveling along a similar path in life. I hope
soon you will have a long time of respite to truly recover and not have
to constantly deal with new and complicated issues. Sending you a very gentle e-hug.
Patricia – So is this thing that is wrong with Lucy genetic? And why didn’t the rescue people take care of it? I will be praying for God’s provision. With animals, it can get expensive, especially if surgery is required. I totally get that!
Thank you for the prayers. I really appreciate it and they are most needed and welcomed.
I just had to read your post a second time. The words/ timing were so
applicable to my news today. I wrote down in my notebook word for word your
“I have come to understand over time …………….that trying to respond instead of
reacting……” Yes today I felt first some stress but I went to respond.
Now after I find out the cost of surgery I think I will need to read again
your words to help me not freak out if the surgery is terribly costly.
Patricia – Surgery and money are always stressful! I would freak out first! Yikes. I wonder if you can get help for the surgery from the SPCA? or some similar agency?
Hang in there. This isn’t a surprise to God! I will keep praying that the finances come together for little Lucy!
Hello Dominique,
Good luck with the last minute wedding details and it sure is nice to hear you are determined to move forward and win!
Thinking of you and yours,
Viviana Walters´s last [type] ..Gaining Strength One Day at a Time!
Viviana – Thank you! I hope things are improving for you as well.