"Laura Lipscombe"

April 2012 ME Story: Laura Lipscombe

I almost missed this month's story.  I had so much going on I didn't realize today is the 12th of the month and a new Becoming VISIBLE 4ME story is up. That would have been a real shame, because this month's story, by Laura Lipscombe, is really impacting. Many of the feelings and situations...

4Walls and AView

FIRST EVER ONLINE HOUSE-WARMING PARTY!

As I sit here writing my Saturday post – a little late mind you – I have so much on my mind that I am a little overwhelmed today.  In just 8 days I will be packing up my two new pieces of luggage for my trip back East for my daughter’s wedding!  Time is suddenly flying past me, it seems, and I feel like I am teetering a bit!

When I return…

I will then have just 8 days to pull everything together to move into my new apartment (barring any problems with the application process).  I feel like my life has suddenly gone into hyper-drive.  Phew!

I’m really excited about all the changes that are coming up but my body is starting to struggle with the demand.  I have also noticed that the stress is suddenly hitting me and hitting me hard – in my gut.

This is where living with CFIDS and FMS becomes quite challenging.  Life continues to happen regardless to how my body chooses to respond.  And if life continues to happen for a long duration – such as the one I have recently found myself in – then eventually my body will just give up.

I am already noticing my body begging for me to lay down.  Unfortunately, that is where the rubber hits the road because I can only slow down so much right now.  Even though I am doing my best to rest as much as humanly possible, I have much to do to get ready for the wedding, as well as, pre-plan for my return and then my consequent move.

I often wonder how in the world I am supposed to keep moving forward when my body wants to do anything but.  I think that is probably one of the conundrums that those without this illness have with chronically ill people like myself.  I am still physically moving forward so that must mean that everything is fine.  I don’t look like I feel so people don’t realize that I just want to drop and not move for the next week.

Even more challenging, is trying to stay gracious, kind, and interactive with other people during this time.  I have all I can do at times just to stand upright, and yet, I need to be appropriately kind.  It’s not other people’s fault that this body of mine is playing tricks on me or refusing to do as I ask of it.  Thus, taking it out on them, at least for me, is inappropriate.  Unfortunately, as much as I desire to always be gracious and kind, I don’t always hit the mark.

The stress isn’t good for the asthma either.  I can attest to that because I am using my emergency inhaler on a more consistent basis.  Today I am feeling tighter than I have in a while.  I am thankful, however, that I least know what to do in these kinds of situations and that in and of itself brings a sort of comfort.

Last night, I spent several hours – in bed – working on a request that I have now received from numerous people.  Some of them more than once! :-)   I have been trying to figure out how to respond to their requests while availing myself to a system that doesn’t overtax me or create more work for me.

Well, I finally figured it out.  I decided to incorporate these individual requests with the list I need to create for the move into my new apartment and put that list on my blog.  That way I can update it as needed and I have the information available for those who need it as well as for myself when I need access to it.

If you look at the top, right hand corner of my blog, I have added a new tab called, House Warming Registry.  That is the solution to my above delimma.   I decided to just randomly add things to the list as I found them, or better yet, as I thought of them (ha ha!) instead of creating the list by rooms.  I also added the price so that it would be easier for those who requested the information to go where they want.

I remember thinking when I finished the list that 53 items didn’t seem like very much.  But alas! I woke up in the middle of the night with several more things that I had forgotten!  :-)   I’m really glad I now have a place to go to when I think of something and just add it to the list.

I haven’t figured out how to keep track of who purchases what in order to insure that there are no duplicates so, if you have any thoughts on how I might be able to do that,  I would love to hear your idea!

I’ve also decided to do the House Warming Party (online) on August 21st which is next Saturday.  Lillie has graciously agreed to donate some of her e-books as door prizes!  Thank you Lillie.  If anyone has any other ideas for how to pull off the first, EVER, online House Warming Party, please jump in with your suggestions!

As for the House Warming Registry, I’ve decided to leave it there until all the items have been purchased.  After that, maybe it will be time for an Overcoming Crisis Party!  Now that would be fun!  :lol:

Hope this find you having a restful and quiet weekend!

UPDATE:  A reader got me to thinking about the date of the Online House Warming Party and I think they are right.  If I wait until after I move in, you all can see photos of me in my new apartment!  Now that would be totally cool!  (I think another reader even suggested that! )  So, when one gets great advice, what do they do?  Change the date!  So I will move the Online House Warming Party to …  October 9th, 2010!  Hope that works for everyone!

Lastly, another suggestion by a reader of this blog.  If you purchase something off the House Warming Registry, if you would be so kind as to leave a comment saying what you purchased, that will help others – hopefully – not purchase the same item a second time.  I will try not to look at who buys what.  That will be a work in self discipline!  :-)

Determined to continue forward,

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About Dominique

Dominique is a part-time writer and blogger. She currently writes about the challenges of living with Myalgic Encephalomyelitis (ME) and Fibromyalgia (FMS) which she has now lived with since December 1992. She also has her own column, which is published in Life Skills Magazine (LSM) in England. In Feb. 2011, she founded, Becoming VISIBLE 4ME, an organization designed to help raise awareness about the reality of living with ME – 1Story@aTime. Dominique has a BS in Drama with a minor in English Lit. ***When not writing, she spends time working on a variety of creative projects, playing scrabble, reading audio books, and looking forward to spending time with her daughter and grand-daughter as often as possible.
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Comments
  • Billygean August 14, 2010 at 5:04 pm

    good luck with everything. I attended a wedding with ME/CFS and my advice in hindsight would be to enjoy the wedding an not stress as if you’re going to get payback you may as well enjoy it!

    BG
    Billygean´s last [type] ..Do I write about clocks more- or poo

    • Dominique August 14, 2010 at 8:45 pm

      Billygean – Love you name! Thank you so much for the good luck! I think that is great advice and one I will take! Thank you again for visiting and leaving a comment. Hope to see you again! :-)

  • Patricia Stotler August 14, 2010 at 8:25 pm

    I know exactly what you described – life keeps handing out stuff to deal with
    and your body is saying PLEASE NO MORE. That is how I’m feeling all the
    months of being a hospice nurse to Sammy, grieving, getting Lucy so soon (yes
    I could have waited), finding out she needs surgery, and for some reason
    quite unusual, but several days of several people just popping in for a visit and
    one friend did yard work for me, — yes, tomorrow with the heat wave
    we are having I will not think anymore about trying to make it to the church
    picnic. My body needs to STOP but I’ve been told not to put the surgery
    off -better to do it before the eye is irritated. Yes it is a genetic abnormality.
    I really don’t think the Rescue Group had her very long and did not notice
    the spot on the edge of her eye; because I had her two weeks and it was
    a friend visiting that saw it. I need to go to a surgery consultation, find
    out the cost, figure out how to pay, and trips to the clinic. But still when
    I think of what you have gone through my load seems many pounds lighter.
    Not knowing is stressful as far as the cost because the referrals I had all
    were closed until Monday. I’m praying it will be under 1,000 bucks.
    Thank you for praying about the funding. The rescue group has its arms
    full of dogs and I think they did their best. I think when a dog has a known
    disability or problem they do make it known and hope someone will adopt
    and take care of it. She charges very reasonable adoption fees to cover
    things like spaying/neutering, and shots. I don’t think they take on
    huge costs on their on but I think if a dog is old or has big
    expensive health issue since it is a no kill rescue and she can’t find a new home – then I think she tries
    to keep these dogs and deal with the big problems. I really don’t blame
    them. I will call to see if they know about financial aid. Could save me a lot
    of looking. If it is way over 1,000 then I will freak out and not know what to do.
    I realize most of the people who come here have Blogs and again I thank you
    when I go beyond responding to sharing my own stuff. I don’t think I want
    a Blog or could keep up with one. So thank you so much again for letting
    me blog on your blog. I will be praying that somehow you will be great sleep
    and more day time rest somehow before you have to leave. Yikes in only
    8 days. Amazing to me that you are doing the housewarming so soon and
    moving so soon. Wo horsie wo – slow down things are moving too fast.
    I will be praying for you.

    • Dominique August 14, 2010 at 8:51 pm

      Patricia – I would think that it wouldn’t be anywhere near 1,000 dollars but I am praying that it will be under 500.00 dollars! Free would be even better! Lucy is so lucky to have you as her new owner! The financial aid thing sounds like a good idea. I didn’t even know there was such a thing! See! I learn stuff from you all the time! LOL!

      You are most welcome. Actually your ‘blogging’ add a lot of dimension and interest to my blog! I’m glad you are “squatting” on my blog! Ha ha!

      I felt like I needed to get it done soon because when I get back I really won’t have much time to plan. Do you think I should push it to after I move into my apartment? I could do that if everyone thought that was a better date. Then I could put up pictures of my new apartment as well… with me in it! Hmmmm……

      Thanks for the prayers. As far as the time line, I have no control over that so I will just collapse after I get moved in! What would that be considered? Pushing off a cliff! ha ha!

      Sending you lots of hugs and prayers for peace, financial provision, wisdom, divine appointments, grace, and more peace!

  • upnorth August 15, 2010 at 9:06 am

    What a great idea to have an online housewarming!

    I know what you mean about struggling to be social during times where it’s taking ALL you energy just to push your body through a busy time. Hang in there, you will get through it. And crash or not, I find in the long run I usually don’t regret having done things like weddings.
    upnorth´s last [type] ..Dealing with Doctors – especially GPs

    • Dominique August 15, 2010 at 3:25 pm

      upnorth – The more I think about the party online, the more I love the idea! I think you’re right. The really important events in our life are just that – important. So we go and then we crash and are thankful because we were able to go!

  • forgetfulgirl August 16, 2010 at 1:01 pm

    You are going on a plane?? Woooo!

    I have had several offers from my parents to take me on a little holiday abroad and I keep refusing because I’m scared of the stress of traveling. I am so, so in awe of you! I hope it goes very well.
    forgetfulgirl´s last [type] ..Housekeeping

    • Dominique August 16, 2010 at 3:43 pm

      forgetfulgirl – Yes. I’m going to do it. I’m a little nervous, but I think once I am on the plane, I will be fine. It’s just getting over that first hurdle. I ordered wheel chair help so that will help a lot to. And I have an emergency kit just in case! So, all in all, everything should be just fine.

      I will let you all know when I get on the other side! LOL! That kinda sounds like a movie, doesn’t it! LOL!

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