"Laura Lipscombe"

April 2012 ME Story: Laura Lipscombe

I almost missed this month's story.  I had so much going on I didn't realize today is the 12th of the month and a new Becoming VISIBLE 4ME story is up. That would have been a real shame, because this month's story, by Laura Lipscombe, is really impacting. Many of the feelings and situations...

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M.E./CFS is a REAL disease

by Dominique on December 22, 2010 - 6 comments
Great interview with Dr. Enlander on M.E./CFS who explains that M.E./CFS is a real disease.

P.S. I can’t locate a video #2 so I’m guessing these were just numbered wrong.  If you find a video #2, please let me know and I will add it here.

Determined to continue forward,
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About Dominique

Dominique is a part-time writer and blogger. She currently writes about the challenges of living with Myalgic Encephalomyelitis (ME) and Fibromyalgia (FMS) which she has now lived with since December 1992. She also has her own column, which is published in Life Skills Magazine (LSM) in England. In Feb. 2011, she founded, Becoming VISIBLE 4ME, an organization designed to help raise awareness about the reality of living with ME – 1Story@aTime. Dominique has a BS in Drama with a minor in English Lit. ***When not writing, she spends time working on a variety of creative projects, playing scrabble, reading audio books, and looking forward to spending time with her daughter and grand-daughter as often as possible.
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Comments
  • Baffled December 22, 2010 at 4:32 pm

    I am praying for the day that WPI comes up with a test for it. Right now I am fighting my insurance company who claims I’m making this whole thing up. Ugh.
    Baffled´s last [type] ..Not in the Mood

    Reply Link
    • Dominique December 22, 2010 at 8:10 pm

      Baffled – What are you fight for? The test? The anti-virals?

      Reply Link
  • Baffled December 23, 2010 at 12:42 am

    I was denied long term disability due to lack of medical documentation of my symptoms. I am in the middle of preparing an appeal. I see a CFS specialist at Tufts next month. I just requested that my primary order the XMRV test for me so that I can have it done prior to my insurance running out. I don’t know if he will go along with it.

    I just watched these vids. I think one and two got combined into the first video since there doens’t seem to be any information missing. I don’t agree with him that CFS is not contagious. I think we have no idea just yet. It might be like AIDS or herpies and can only be passed along under certain conditions. There have also been demographic clusters of this illness documented so there must be a contagious phase of it.
    Baffled´s last [type] ..Not in the Mood

    Reply Link
    • Dominique December 23, 2010 at 10:52 am

      Baffled – I thought that as well. Video 1 and 2 are actually withing the first video. Cool. I didn’t make a mistake then.

      Reply Link
  • klbrowser December 29, 2010 at 10:56 pm

    Thanks for posting these! May I share them on my blog? I found your site via “Microcosm”. And my condolences on the loss of your pup.
    klbrowser´s last [type] ..Rave of the Day for December 29- 2010-

    Reply Link
    • Dominique December 30, 2010 at 11:02 am

      klbrowser – Sure. Thank you for the condolences.

      Reply Link

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