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IN MEMORY
What I’m Listening 2
Monthly Archives: January 2011
Mr. Winter and Ms. Spring
For the past few weeks, the weather here in Tulsa, Oklahoma, has been volleying back and forth between the 20’s and the 40’s. But yesterday, as well as today, we were suddenly greeted with a wonderful spike in warmth as we have watched the temperatures climb to the low to mid 70’s. Tomorrow, we return to the normal pattern of our weather volleying between the 20’s to the 40’s – with a little possible snow thrown in the mix. This …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, FMS, journey, life lessons, Mr. Winter, Ms. Spring, personal, perspective, relapse, symptom
18 Comments
CHANGING the DANCE w/the Beast within ME
One of the things I have discovered throughout my life, and especially living with a chronic illness, is that life isn’t fair and it usually comes with a myriad of unexpected circumstances. Most of which require me to do one of two things: adjust and grow or complain and stay stuck. I’m am once again finding myself in a new place in this journey with ME/CFS. It is a very odd place to be and yet I have this amazing …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, crash, FMS, health, journey, life lessons, Myalgic Encephalomyelitis (ME), personal, perspective, relapse
33 Comments
Changing MY Expectations of the word DEFEND
As many of you have probably noted, I have been struggling this past week. To be honest, I think my eye issue derailed me and I have been wandering around in the wilderness. You might think that is a bad thing, but for me, it really isn’t as it provides me the space I need to think, to pray, to analyze, and to contemplate deeply. Sometimes it affords me the breathing room I need to just let go and do …
ME: somedays just a Heavy Yoke
This week has been such an odd week. One filled with research on how to do many of the things I need and love to do without over using my eyes. Trying to explain what’s going on with me at this moment so people understand. Doing paperwork (online) to get transportation set up and finalizing the delivery process of my groceries (outside of that which I get from Natural Farms) with Whole Foods. When I got to Friday, I felt …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 'heavy yoke', 4 walls and a view, cognitive, FMS, ME, Myalgic Encephalomyelitis (ME), personal
36 Comments
4 Tricks 2 Overcome Memory Deficits of ME/CFS
This post is dedicated to my friend Lorraine who loved an idea I posted on Facebook. It got pushed to the back burner this week as the result of my eyes, but I wanted to keep my promise and finish it, so here goes. One of the most frustrating aspects, for me personally (besides my eye problems) is my inability to remember things. I have tried so many things with most of them turning out to be colossal failures. However, …
Challenging CHANGES
As my readers know, the months that have followed my exposure to a toxic chemical have been full of challenges and changes. Even though I would rather forget about much of 2010, it appears that some of those challenges have now followed me into the New Year and I now have to confront them and find way to overcome or work around them. As you know I have been having a lot of trouble with dizziness. So much so I …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, audio books, books, crash, eyes, Fibromyalgia, health, Myalgic Encephalomyelitis (ME), read, reader, symptom, write
54 Comments
Book Reivew: Invasion
I recently read Invasion, by Jon S. Lewis. I actually tried to read this book several times and was unable to make it past the 6th chapter. I don’t know if it is because this book is geared at teens (most likely the problem) but I just could not suspend (my) belief enough to buy into the characters and premise at the beginning of the story. I got stuck on the father leaving his son somewhere his son was obviously …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, Blogging4Books, Book Riview, Invasin, Jon S. Lewis, Suspense
4 Comments
Book Review: Possession
After reading, Possesion by Rene Gutteridge, I have to say … I loved this book! And I have now discovered a new author to read in my favorite genre, suspense/thriller. This book was impossible to put down once I started. It took off with a bang and never stopped. Love that! In addition, for me at least, the subject of loosing all of one’s possession was surreal, yet, profound as I just experienced this in June 2010. The character developement …
Book Review: Becoming A Woman of Simplicity
This book review of Cynthia Heald‘s book, Becoming A Woman of Simpliticy, has me a little flummoxed. I chose to use it as my morning Bible Study and I’m glad I did. This is not a book that could be properly digested by sitting down and reading it in one fell swoop. There was much to ponder and process between the covers of this book. Having said that, I did find myself towards the end, growing weary of the scripture …
my OI/POTS 24-test and results
As you know, I have been increasing my water intake dramatically as well as my salt intake to counter the effects of OI/POTS. I’m actually doing well with the water consumption. I have always been a huge drinker since getting sick 20 years ago so this wasn’t too difficult for me. I am now settling at around 12 glasses of water a day or 3 quarts which seems to be a good place for me. As for the salt, I …
Double Book Review: The New Day Dawns/As Shadows Fall
When I started reading this series that my friend Lillie sent me, I wasn’t sure if I would like them because this isn’t a genre that I normally read. Not because I don’t like it, but more because I have never found a story line that interested me. Well, that changed this past week when I read Grace Anne Schaefer’s, The New Day Dawns (book one), and, As Shadows Fall (book two). This series is hands down the best fiction …
OI/POTS remedy and progress
These past few weeks have been quite the struggle. I have always suffered the dizzy spells associated with Orthostatic Intolerance (OI) or Postural Tachycardia Syndrome (POTS), which almost 97% of those suffering with ME/CFS have, although I had no name to put to it until recently. Despite that, since the toxic chemical exposure, I am having more and more difficulty with these dizzy spells and unfortunately I am finding no help from the VA healthcare system. I think Sue is …
a Triple Cord is NOT easily broken
This past Monday was a turning point for 4Walls and AView. It documented the one year mark since I launched this blog. As I look back at all that I have written this past year, as well as the comments and what has transpired as a result of the birthing of 4Walls and AView, I am deeply moved and humbled. When I originally decided to stop blogging about politics due to a decline in my health and my cognitive abilities, …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, aniversary, Dekker, FMS, health, hope, journey, Myalgic Encephalomyelitis (ME), perspective, strength, triple cord
25 Comments
XMRV confirmed in French study!
If I could get out of bed and do a jig, I would!! I got this in my feed from blogs I read and boy did it make my night! De Meirleir on Retrovirus Retrovirus in European patients: De Meirleir confirms NIH/FDA & WPI findings (in FRENCH) Study results will be shared at the Sept. 7& 8 international XMRV conference ————————————————- Google translation of article below Discovery: a new virus could cause chronic fatigue Magazine – Health Sciences and Tues, …
my Prayers and Condolences
I just wanted to take a few minutes and share my heart-felt sadness at the events that took place in Tuscon, AZ, today. I am also sending my prayers for the quick and complete recovery of Representative Gifford who was shot at point blank range, but survived it and the surgery and the doctors are now optimistic of her chances of recovery. My prayers also extend to her family, friends and co-workers. My prayers and condolences also go out to …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, AZ, condolences, death, prayers, Representative Gilford, tragedy
8 Comments
how does my brain go from kraut to slaw?
I went out yesterday for a little while (probably less than a half-hour) to take care of some banking business. The bank is located right around the corner from where I live. Anyway, I went in and had to stand in line. I so hate that. I swear one of these days I’m going to drop like a sack of potatoes. Let me tell you, standing has become my least favorite positions! It is just so hard on my body …
Posted in Myalgic Encephalomyelitis (ME)
32 Comments
2011: A life of Simplicity
I have been reading many blogger’s New Year resolutions with wonder. I’m always amazed at how the New Year stirs up all sorts of new plans, hopes and desires in people. I think that is a great thing. Even so, this year I decided that I am going in a different direction. My New Year’s resolution, if you will, for 2011 can be summed up in one word – simplicity. The losing of all my worldly possessions, my home, and …
Stand Firm
Grief is a funny thing… These past 3+ weeks since Dekker’s death have been a rollercoaster of emotions. These past few days have found me wanting to move past the grief, and yet, unable to. As I recently told a friend, it felt as if I was stuck in my life and nothing I tried helped me move forward. That is a very hopeless feeling. Several days ago, my friend, Cusp, sent me a note on Facebook telling me about …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, Dekker, grief, journey, life lessons, loss, personal, perspective, pugs
20 Comments
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