"Laura Lipscombe"

April 2012 ME Story: Laura Lipscombe

I almost missed this month's story.  I had so much going on I didn't realize today is the 12th of the month and a new Becoming VISIBLE 4ME story is up. That would have been a real shame, because this month's story, by Laura Lipscombe, is really impacting. Many of the feelings and situations...

4Walls and AView

I Feel like DANCING!

"I Feel like DANCING

I Feel like DANCING!

I have been keeping a secret, if you will, for a few weeks from you because of the atrocious roller-coaster I have been on physically these past eight months.

To tell you the truth, there were times when I wasn’t sure that I would make it.  I really thought at times that if my body did not give up, my spirit would. I was afraid if I said anything, I would crash again and have gotten your hopes up – and mine – for naught.

It’s so odd, but these past eight months I have often felt as if the rug has been unexpectedly pulled out from under me and I just could not find solid ground.

But I kept trying different things, fighting with determination, hoping even when I saw no hope, and moving forward the best I knew how. 

Then a few weeks ago, I noticed little telltale signs of improvement.  Then I noticed consistent, if slight improvements, and these past two weeks my energy levels have been around 30-40%.

Not my normal but gloriously wonderful.  I was so overcome with joy that …

I danced.

For a full hour.  And it felt marvelous!

I also walked out my front door on my own two legs and went down to the second floor and checked my mail and went to take some home-made corn chowder I had made to our secretary.

Again, it felt amazing.  (I am tearing up as I write this I am so overwhelmed with joy and gratitude!)

I keep finding myself on the verge of tears.  I feel as if someone had opened the prison I have been living in these past few months and freed me.  Oh, how glorious it feels.

I have this joy that is so indescribable bubbling up and out of me. I told a friend today and his response was, “Wow!”  I think he summed up how I feel quite well.  It has been a long, ardous journey.

I think some of the changes that I have made have paved the way for the improvement in my health.

1.  The Artist’s Way course has really helped me learn to be kind to myself and find a creative outlet even when there seemed to be none.

2.  Last Friday I was handed $200 dollars from someone I have never met to buy something I needed.  I have been praying for the past two week for 2 barstools so I can move from my bed to a chair for a few hours a day. 

And so I could have people over when I started feeling better.

Then suddenly, my prayers were answered and I had the $200 dollars in my hand, plus the ability to purchases 2 barstools to get me by until I finish furnishing my home. 

That one thing birthed something deep inside my soul and told me that things were moving forward and upward.  I could feel the truth of it inside of me and then I started witnessing it unfold in my every day life.

My hope started rebounding; anticipation started building – even if it was tentative, and I started fighting even more.

3. I seemed to have found several things to keep the eye pain at bay such as very little time online, a heated eye mask that I made, taking IBprofen at the first hint of eye pain, and regular breaks in the dark or reduced light every day, not watching movies and tv, not reading actual books but switching to audiobooks, which seem to be working when I follow them like doctors orders. (smile).

4.  Finally admitting I needed help and hiring my friend to take care of all the heavy stuff was paramount I think.  I had to do my part and let go and let someone else do the heavy lifting, if you will, but it is paying off.  I finally have come to a place that I understand my health has been severely compromised and to have any quality of life I need extra help and that is okay. 

5.  I use the wheelchair as often as I need and I moved my bed back into the living room until I finish furnishing my appartment.  The more energy I conserve, the better.  And the more I am able to do in the long run. 

6.  I have created a schedule and I am sticking to it.  I spend 18-20 hours resting in bed every day, while allowing myself one day to do as I please within reason.

7.  I have been writing.  I have written a short story and am now working on a second one.  Plus I am writing 750 words every morning.  I have also now completed the first three chapters of my memoirs or my book – whatever it turns out to be. It feels glorious.

8.  I have finally after months and months, flipped my internal clock.  I am now getting up at 5:30 in the morning and am back in bed between 7-8 pm and usually asleep my 9.  The strict routine has paid off handsomely I think.

9.  I started drinking Amazing Grass and have altered my diet to a small meal once a day and the shake for dinner and something very small for breakfast.  That has taken a load of my gut and the shake has really undergirded my body noticeably.

10. Someone special has entered my life.  I don’t know if we will be friends for life or …what ….

but he makes me smile and laugh and I enjoyed an amazing dinner with him last weekend. 

He cooked. 

Actually … we cooked together.  And we’re making plans to do it again this weekend. 

I have known him for over a year and have slowly been getting to know him better.  Then something just changed and …  well, I’m not sure what “and” is yet, but … life is a bit sunnier now.   (smile)

It’s as if the light to my life was suddenly turned on, unexpectedly, and possibilities and hope are suddenly evident everywhere. 

It’s like God has been putting this mosaic together all this time but I couldn’t see his handwork in the midst of the devastation I was dealing with from my health and my grief over Dekker’s death. 

However, now that I’m eight months out, when I look back, there is this beautiful mosaic that stands as a reminder that even in my darkest moments, there are new mercies coming in the morning.

I am overcome with humility, with appreciation, and with joy.  I have learned that life can change in an instant and I have to enjoy every morsel of it while I am in this moment. 

Even the bad moments – or what I perceive to be bad moments, have something to teach me. 

I am also learning to push my fears and hesitations aside and take chances. I must sieze this moment now, because tomorrow it will be gone and regret will be left in its place.

I know what it is like to like in the dark, to be isolated, to be in God awful pain.  But I also know what it is like to be free, to be in the light and to have a break from all the devastating effects of this horrid illness.

I find myself so emotional that tears are never far.  My appreciation for the gift I have been given, no matter how long it lasts, fills my heart overflowing.

All I can say is …

I feel like dancing…

Determined to continue forward,

"Red Signature"

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About Dominique

Dominique is a part-time writer and blogger. She currently writes about the challenges of living with Myalgic Encephalomyelitis (ME) and Fibromyalgia (FMS) which she has now lived with since December 1992. She also has her own column, which is published in Life Skills Magazine (LSM) in England. In Feb. 2011, she founded, Becoming VISIBLE 4ME, an organization designed to help raise awareness about the reality of living with ME – 1Story@aTime. Dominique has a BS in Drama with a minor in English Lit. ***When not writing, she spends time working on a variety of creative projects, playing scrabble, reading audio books, and looking forward to spending time with her daughter and grand-daughter as often as possible.
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Comments
  • Carolyn August 10, 2011 at 4:21 pm

    This is amazing, Dominique. I am practically dancing too :) ))

    I think I want to share with you that last Easter, my mother, who I now live with, went to church and there was an opportunity for people to write down names of folk who needed prayer. As we had been praying for you very much, she chose you on this occasion.

    It is a huge encouragement that you are so improved and are able to do more “normal” stuff. And it is obvious that this time you have been through has not been a lean time, for you have learnt much.

    Thank you so much for being humble enough to share your struggles, your lows and your highs throughout this time. It takes character, which you obviously have in spades. Praise the Lord for His mercies. xx

    • Dominique August 10, 2011 at 4:29 pm

      Carolyn – thank you for sharing this with me. Again, I am moved to tears. Ahhh…life is so beautiful and so amazing. There is so much potention for new possibilities and nothing is too big for us or for God.

      Thank you mother for interceding for me. I know so many people have been praying dilegently for me and their prayers have not gone unanswered or unnoticed by me. Even in the darkest moments when I was desperately struggling, I knew I was never alone.

      I’m so glad that we crossed-paths. You have been a great blessing in the short time I have known you!

  • Carolyn August 10, 2011 at 4:44 pm

    Nothing’s too big for us when we have God, that’s for sure. We must hang on to that! Thank you for your kind words. I think we need to encourage each other very much, especially as Christians in these perilous times x

  • Linda August 10, 2011 at 4:46 pm

    Oh Dominique — what wonderful news!!! I am so happy for you my friend. You are right, life can change in an instant. Please keep us posted :)

    • Dominique August 11, 2011 at 9:24 am

      Linda – thank you. I hope you are doing better my friend. I’m here if you need me via email. I hope you know that.

      Love and hugs.

  • Yun Yi August 10, 2011 at 5:48 pm

    this is such an incredible improvement you’ve just made! so proud of you! very very happy for your new “friend”. things are getting good on you. i hope your progress keeps upward, no matter how slow it is.

    • Dominique August 11, 2011 at 9:23 am

      Yun Yi – thank you! I too hope the progress continues. At least I now know that no matter how bad it gets there is always hope. Always.

  • Sue Jackson August 10, 2011 at 6:09 pm

    Wow, wow wow!!! This is all wonderful news, Dominique! I can hear the joy and gratitude come through in your writing. I am so very happy for you.

    You have been through a very dark and difficult time, and you deserve this turn of events!

    Now just remember to take it slow…one step at a time, one day at a time, little by little…and your world will continue to open up for you.

    Sue

    • Dominique August 11, 2011 at 9:23 am

      Sue – Joy…I had almost forgotten what that emotion was like Sue.

      I’m glad for the advise. I actually have thought that very thing. I can’t rush forward. I so understand that now.

      Thanks. Looking forward to seeing people’s reaction to your story on BV4ME this month.

  • Toni Bernhard August 10, 2011 at 6:42 pm

    I am so happy for you Dominique. These past few months have been so hard, but you never lost your faith and you persevered and you were willing to try different things and now look. A new you and a new friend! I’m bubbling over with joy for you. All my love, Toni

    • Dominique August 11, 2011 at 9:21 am

      Toni – I’m bubbling over too! ha ha Smiling a lot these days!

      Thank you Toni. I know as we have become closer as friends that you are indeed bubbling over with joy for me. That is one of the things I admire about you.

      Love and hugs.

  • Baffled August 11, 2011 at 12:43 am

    What excellent news!! I’m so happy for you!

    • Dominique August 11, 2011 at 9:20 am

      Baffled – Thank you. I miss reading your blog. Hopefully, I might be able to make some time to catch up on my blog reading. If I do, yours will be first my friend!

  • Lillie Ammann August 11, 2011 at 4:15 am

    Hallelujah! Thank God for answered prayers.

    I love this observation: “It’s like God has been putting this mosaic together all this time but I couldn’t see his handwork in the midst of the devastation I was dealing with from my health and my grief over Dekker’s death.”

    This is another example that even if our darkest hour God is planning for us such good things we aren’t even able to comprehend or ask for!

  • Chris78 August 11, 2011 at 5:09 am

    Yeah! Wow Wow Wow! I am very glad that you are experiencing relief from your symptoms. I hope that this lasts and that you soon see even more improvements. And good luck with the book….

    • Dominique August 11, 2011 at 9:19 am

      Chris – You know good news is good news, right! Thank you so much. I hope we all are able to have these moments of respite more often!

  • Laurel August 11, 2011 at 8:44 am

    WONDERFUL news, Dominique! So very happy for you!!!

    • Dominique August 11, 2011 at 9:18 am

      Laurel my dear friend – Thank you. I so hope you are doing better. You have never been far from my mind these past few weeks.

      Sending you all my love and hugs!

  • phylor August 11, 2011 at 10:22 am

    hope you keep on dancing! great news; you certainly are receiving the kind of relief, joy, and pleasnat anticipation you most definitely deserve. Wishing you butterflies and balloons, and many more “feel better” days! Your strength of faith and spirit contains to amaze and inspire me.

    • Dominique August 11, 2011 at 11:33 am

      phylor – Thank you so much! I receive the butterflies and balloons and many more better days.

      I think we all inspire each other in our own ways, but thank you for your kind words phylor!

  • Patricia Stotler August 11, 2011 at 1:57 pm

    Wow what a dramatic change and I hope it lasts a very long for
    forever time. It gives me hope as I’ve been feeling a bit
    hopeless about any improvement. Can hardly believe my eyes!!
    Such great news!

    • Dominique August 12, 2011 at 8:25 am

      Patricia – Ha ha! I hope so to! I’m so done with long, long stints in the dark and being unable to do anything.

      I’m sorry my friend that you are having such a hard time. I hate that you are struglling so.

      I’m putting something in the mail for you to let you know you are never far from my thoughts!

  • Annie August 11, 2011 at 5:44 pm

    Dominique – just stumbled across your blog in time for the good news! So happy for you. As someone who’s literally only read two of your posts it looks to me like the pacing MAY have had a massive impact? I’m appalled that doctors had been telling you to push through and crash. But this whole condition is so confusing and it sounds like many positives have come into your life so who knows? Aah the mystery continues but the main thing is that you are feeling so well and that’s just fabulous. Enjoy rediscovering the world.

    • Dominique August 12, 2011 at 8:29 am

      Annie – Thank you for dropping by and for leaving a comment. I really appreciate it. Pacing plays a huge part, no doubt. I think the wheelchair is also a key factor as well as the shake. Then having a schedule to let my eyes rest throughout the day also helps. I’m not perfect or a 100% but 30-40 is so much better than 10-20.

      I’m still struggling with the eye issue but at least I am not having the severe eye and head pain that I had been having.

      Yup. I actually had one specialist give me the “father’ talk about how I just need to push and collapse and he would be thrilled with that. I just need to ‘do it.’ Ugh.’

      Thank you again for your kinds words. I really look forward to getting to know you a little better.

  • LD Jackson August 11, 2011 at 7:44 pm

    I am glad to see you are doing some better. I know you have been going through a very dark place in your life and it’s good to know there is light at the end of the tunnel.

    As for your new “friend”? Details, young lady, details. 8)

    • Dominique August 12, 2011 at 8:31 am

      Larry – LOL! Never. Details will not be forthcoming. It’s probably a good friendship or… but that is all I will say. We had an enjoyable dinner and are doing it again this Sunday. Nice man. I’m just happy to be able to have some human contact, you know!

  • Sparkling Red August 12, 2011 at 1:04 pm

    That is wonderful, beautiful, amazing, gorgeous, blessed, and fantastic! I thought that you must be near the end of your rope from reading your previous posts. What a miracle that you made it to the light at the end of the tunnel!
    I know what you mean about dancing. I danced it out for the first time all month a couple of days ago, when I emerged from a setback, and I felt like a whole new person.

    • Dominique August 13, 2011 at 6:17 pm

      Sparkling Red – I love your enthusiasm! I think you and I would be great friends if we lived close by! ha ha!

      I’m so glad you recently came out of your own setback! Yay!

  • Patricia Stotler August 13, 2011 at 4:07 pm

    Thank you for a surprise to look forward to. Patricia

    • Dominique August 13, 2011 at 6:17 pm

      Patricia – You are welcome. It’s on it way. Just something to know you are being thought of!

  • Peggy August 13, 2011 at 11:49 pm

    So happy to hear things are better and hope they keep getting better for you!!

    • Dominique August 14, 2011 at 2:09 pm

      Peggy – Thank you so much. Hope all is well with you. I so need to catch up on my blog reading but still struggling with the eye issues.

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