Translator
IN MEMORY
What I’m Listening 2
Monthly Archives: September 2011
Can Food Heal MY BRAIN?
I was recently reading Baffled’s blog, Infinite Daze, (great blog to check out if you haven’t already) and she had posted a video. I decided to watch it in full (or more accurately listen to it) and by the end, I was jumping up and down with excitement! I just had to share it here and tell you why I am excited. Dr. Terry Wahl was diagnosed with MS (which we know is similar in how it operates in the …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, Food, Healing, health, journey, ME, medicine, Myalgic Encephalomyelitis (ME), symptom, Terry Wahl, winning
21 Comments
Wedding and the Promise of Possibility
I finally made it to my friends wedding in Claremore yesterday and as I promised many of you, I am posting the photos here. Unfortunately I am not in them because the wedding started with out me as I was a little late. But my friend’s wedding went off without any other hitches and was lovely and she and her new husband are quite happy! It was really nice to see her so happy. My friend did capture one of …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, friend, perspective, photography, wedding
16 Comments
MY Rebirth: Choosing MY Own Color Palette
I have been repeatedly asked what has caused the transformation in me that people seem to be noticing when they see me in person and even my good friend, Toni, asked me in an email recently about the change she noted in my birthday photos. So, I thought I’d share the broad brush strokes here. Toni responded to my explanation that I had been reborn. I think that really is what happened. The relapse was so severe and so all …
49th Birthday Update
In Oklahoma we always have to be cognizant of the weather. We never know when a tornado or bad weather is going to creep in and change our plans. Unfortunately, it did just that for my birthday. After dinner, we had to move inside and there was no room for dancing and the band was just way too loud. An hour was about all me and my friend could stand. Despite the bad weather though, I had an incredible night …
49 Things I have Learned in My Short Life
Today is my birthday and as I was standing at my large windows, looking out over the darkened city and watching the city lights glow through the early morning hours, I thought about how this year, coming, feels so different to me. These past two years have been the most challenging I have endured in my life but I somehow pulled through and moved forward. I then thought about all that I have learned and decided I would celebrate my …
Posted in Myalgic Encephalomyelitis (ME)
22 Comments
Mad as Hell and Broken Hearted for Jenny
Thank you Lillie for reminding me that not all my readers know who Simon Wesley is. He is a UK (England) based psychiatrist who believes ME and CFS are not real organic illness but illness that are psychological and social in nature. Essentially, we are sick because we say we are sick. He is a huge proponent of CBT and GET which have been shown not to work in most people with ME and actually has caused many patients to …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, health, Jenny, JK Rowbory, journey, life lessons, ME, Myalgic Encephalomyelitis (ME), personal
11 Comments
September 2011 ME Story: Barry
As I was getting ready to put up todays post, I was stunned to realize how much things change in just eight months. I am out of bed, out of my wheelchair, and exercising for the first time in almost two years! And today, I put up our eighth story over at Becoming VISIBLE 4ME! In addition, this month’s story is our first male story which I was very interested in reading. I have been getting to know Barry for …
the TRUTH about ME
This is an excellent video about the truth of myalgic encephalomyelitis (ME). I have all of Giles videos now on the Becoming VISIBLE 4ME youtube channel because he does a really good job. This video makes it clear that the many misconceptions being propogated by people like Simon Wesley needs to stop and the truth needs to be told. I thought I would share the video with you and we could all help Giles makes this go viral as that …
WPI wins $100,000 for RESEARCH!
When I wrote my post yesterday about “Can YOU see it?” and about how things are starting to move in the Myalgic Encephalomyelitis (ME) arena, I was unaware of some amazing news. For those of you who may not know, Whittemore Peterson Institute (WPI) won $100,000 for research! Can you see it! Things are happening! I was so excited I actually thought of going to the rooftop and dance for joy! I thought I would share the video from Facebook …
Posted in Myalgic Encephalomyelitis (ME)
10 Comments
Can YOU see it?
Dancing on the rooftop and looking at the view makes me realize that even THIS was a dream and a desire of mine for several years. Everytime my friends and I would drive by downtown, I would express my deep desire to live here. At that time, it wasn’t even a remote possibility because there weren’t any rentals in the downtown area here. Yet, several years later, THIS has become my fulfilled dream. I am living among the tall building …
Posted in Myalgic Encephalomyelitis (ME)
10 Comments
Allowing Illness to shape me into a better person
I was sitting on the rooftop deck this week (it would be the 11th floor) as it has become my favorite place to write … and if you can believe it … dance. Anyway, I was sitting there looking out over this expansive view and thinking about a time where everything before me would have been a barren wasteland – something called the dustbowl. Yet, as I looked out over the vast city I love I saw business thriving, beautiful …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Invisible Awareness", consequences, Fibromyalgia, FMS, friend, health, hope, journey, life lessons, ME, mold, Myalgic Encephalomyelitis (ME), personal, perspective, Purpose, relapse, winning, write
14 Comments
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