Comments on: Telling MYSELF the truth http://www.4wallsandaview.com/cfids/telling-myself-the-truth/?utm_source=rss&utm_medium=rss&utm_campaign=telling-myself-the-truth Living with NEID (CFIDS) & FMS Thu, 29 Jul 2010 13:59:49 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Dominique http://www.4wallsandaview.com/cfids/telling-myself-the-truth/comment-page-1/#comment-529 Dominique Mon, 15 Feb 2010 03:15:10 +0000 http://www.4wallsandaview.com/?p=661#comment-529 Patricia - Very true! If by remission they mean periods where we are doing better, than yes, I would agree with that. But my definition of remission means the illness is gone and may not return. That isn't the case with CFIDS/ME. I so wish! But like I said, if they mean periods where we are functioning better, then yes. Patricia – Very true! If by remission they mean periods where we are doing better, than yes, I would agree with that. But my definition of remission means the illness is gone and may not return. That isn’t the case with CFIDS/ME. I so wish! But like I said, if they mean periods where we are functioning better, then yes.

]]> By: Patricia http://www.4wallsandaview.com/cfids/telling-myself-the-truth/comment-page-1/#comment-524 Patricia Mon, 15 Feb 2010 02:52:38 +0000 http://www.4wallsandaview.com/?p=661#comment-524 I guess I got the word remission in my mind in response to crash. You can crash from wherever you are. Right? Today at church someone told me another member had CFS and had good times and bad times. Language can be so trickly. CDC info on CFS says people experience periods of remission. We do? We try to compare and explain the best we can. What is so wonderful about sharing is that we do lead the same kind of limitations/lifestyles and so we can better understand and feel understood even if we aren't identical twins. I guess I got the word remission in my mind in response to
crash. You can crash from wherever you are. Right? Today
at church someone told me another member had CFS and had
good times and bad times. Language can be so trickly.
CDC info on CFS says people experience periods of remission. We do?
We try to compare and explain the best we can. What is so
wonderful about sharing is that we do lead the same kind of
limitations/lifestyles and so we can better understand and
feel understood even if we aren’t identical twins.

]]> By: Dominique http://www.4wallsandaview.com/cfids/telling-myself-the-truth/comment-page-1/#comment-445 Dominique Thu, 11 Feb 2010 04:29:05 +0000 http://www.4wallsandaview.com/?p=661#comment-445 Patricia - I don't ever use the word remission. I don't think my illness is ever in remission. As I said before, I have good days and I have bad days. On my good days, I can take short walks. Most days, however, I don't walk very far because it is too exhausting. I try to do a little every day like five minutes or so. Actually, I know many CFIDS people like you. You are not alone. And they use the carts at the store to. I don't because I am afraid I would 'cause an accident' by getting overwhelmed. But I am mobile and able to do more than you sound like you can do. I can't believe anyone would say they are in remission. That implies that we are well and we are most definitely not well. Patricia – I don’t ever use the word remission. I don’t think my illness is ever in remission. As I said before, I have good days and I have bad days. On my good days, I can take short walks. Most days, however, I don’t walk very far because it is too exhausting. I try to do a little every day like five minutes or so.

Actually, I know many CFIDS people like you. You are not alone. And they use the carts at the store to. I don’t because I am afraid I would ’cause an accident’ by getting overwhelmed. But I am mobile and able to do more than you sound like you can do. I can’t believe anyone would say they are in remission. That implies that we are well and we are most definitely not well.

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