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IN MEMORY
What I’m Listening 2
Tag Archives: chronic fatigue syndrome
Today I am THANKFUL 4
[Thanks #1] …. because it affords me mobility, freedom and continued independece.
Why I Dropped the “F” Word
May 12 is right around the corner. It is an International Day of Awareness that has become near and dear to my heart as it is the International ME/CFS Day worldwide. This is the illness that I have determinedly and doggedly dealt with for over twenty years. For this year’s celebration, I have decided to no longer continue using the “F” word. For years, I have always had this sense that something was wrong about how Chronic Fatigue Syndrome was …
The Energy Conundrum within ME
Before I share something I have been thinking about long and deep lately, I want to be as transparent as possible. This post is my understanding of what I believe is going on in my body in relation to how to better explain the devastating depths of the fatigue I constantly struggle with. I am not a researcher, scientist, or doctor. Having said that, however, I have now lived with this illness for 20+ years and I believe my ME …
Running Against me and me … and ME
I’ve have been spending a lot of time looking out my window at my view as of late. So much so that there have been moments when I find my mind wandering to days long ago: days of a physical ease that I desperately long for. As I allowed my mind to wander through the halls of my memories, I smiled as I watched myself putting on a pair of running shoes and heading out for one of my long …
Invisible Awareness Launch REMINDER!
I just wanted to take a quick minute and remind everyone that Invisible Awareness dot org launches at midnight tonight! We will be launching with Laurel’s story so when you have a chance tomorrow, please go by Invisible Awareness dot org and copy and paste a few paragraphs of her story onto your blog and let’s spend the day sharing away. Also, please don’t forget to add a link to Invisible Awareness dot org at the end of your post. …
Laura Hillenbrand
I wanted to share something with you that I took the time to watch. Our fellow friend and ME/CFS sufferer, Laura Hillenbrand, has written another book. It took her seven (7) years to write it. Imagine that! Seven years.. Anyway, she was interviewed on the Today Show and I wanted to share the video of her interview. (Thank you Sue!) I will definitely be getting this book! Laura reminds me that it may take seven (7) years for me to …
this place called, middle
When I grew up, I was always told to push through whatever difficulty I was going through. I have watched for years, as my mother got up every day, no matter how bad she felt, and did everything that was required of her…and then some. In the military I was taught to focus and just do it. There was very little thought. It was more of an instinctive reaction – one that was honed through hours and hours of training …
Determined to turn IT all around
The discussion of our (Chronic illness sufferers) relationship with our doctors has popped up throughout the web today on blogs as well as on Facebook. As a sufferer of a chronic illness (two in fact) that has mystified the science world, medical world and our government for decades, the doctor / patient relationship continues to prove to be the most challenging of all our relationships. As I mentioned yesterday…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, chronic fatigue syndrome, determined, doctors, Fibromyalgia, flare-up, health, medication, pain, RADS, symptom
19 Comments
Ready, Set, and GONE!
This will be a quick post tonight as I am utterly exhausted and tomorrow I have laundry to do, Dekker needs a bath, and I have to pack for my flight on Monday! Calgon take me away! Anyway…
Dreams Become Reality One Choice at a Time
Time is quickly winding down and I find myself faced with only two more days before I will be heading to the airport to head to Massachusetts for my daughter’s wedding! Thus today was quite a busy day! I had a friend from church ask for my help in purchasing a new laptop and the budget was $400. So off we went to Tulsa and we ended up getting a new printer, laptop, plenty of ink, a laptop bag, and …
It’s a good life on most days
When I woke up this morning, I was exhausted. Yikes. So I decided to take the day and rest, rest, rest (as my friend Renee always tells me ). I did fine until I called to change the reservations to one of the hotels I had and all hell broke loose. I got the hotel issue worked out, only to find out…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, bad day, chronic fatigue syndrome, fatigue, life lessons
4 Comments
All things that go up must come down
It has been said that, all things that go up must eventually come down. Unfortunately, that proves true with CFIDS and FMS more oft than not. Today, I have been feeling pretty bad. If I didn’t know better…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, bad day, chronic fatigue syndrome, crash, fatigue, health, life lessons, stress, winning
12 Comments
The Web: A POWERFUL & POSITIVE impact on CFIDS/ME
I’m a thinker – if you hadn’t noticed – and today, I have been contemplating a myriad of things. I can’t seem to really focus on one thing as I have so many things going on at the same time. This period of my life is little too busy for me. I like the calm, quiet, peaceful existence. Be that as it may, I started wandering over…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4Walls and A View, chronic fatigue syndrome, Fibromyalgia, internet, journey, power, web
17 Comments
Faith, Hope and Anticipation
You know something? Today was a good day. Interesting as it was laced with several asthma attacks. The first was a result of losing our air conditioner when we lost our electric. Amazingly, it didn’t take more than 20 minutes or so before I was having the ‘asthma cough’ as I call it. My friend asked me if I was okay and if I was having problems with the asthma. I responded that I didn’t know because this is kind …
I write like … who?
I was reading blogs the other night when I went over to visit Forgetful Girl’s blog. She had this very interesting item on her blog. I decided to play with it and see what happens. I was a little stunned to find out what my results were. Here they are…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Dan Brown", 4 walls and a view, blog, chronic fatigue syndrome, write
7 Comments
Coming to terms with loss and reality
For the past few days I have been sleeping, resting, and sleeping! I have been so utterly exhausted I haven’t been able to do much else. Monday I got out of my ’4Walls’ and went with one of my friends to Tulsa. We decided to hit one of the malls after the errands were all done. It is amazing to me how the smallest thing can suddenly stop me dead in my tracks. I was…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, cognitive, grief, health, hope, life lessons, loss
18 Comments
TWENTY things I REFUSE to DO
As I have been doing my best to meet each and every challenge these past few weeks head on, with integrity and grace, I realized that this really comes down, for me at least, to what I will and won’t do.
Posted in Myalgic Encephalomyelitis (ME)
Tagged "I REFUSE", 4 walls and a view, chronic fatigue syndrome, journey
24 Comments
When ALL is SAID and DONE
Yesterday proved to be a very challenging day for me. I was struggling with dizziness which seems to come and go, but when it hits, it is bad enough that I struggle doing just about anything. In addition…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, Dekker, Standing, wedding, winning
15 Comments
Good day with good news
I’ve been trying to figure out how to tell you what I want to tell you without telling you what I can’t tell you! I know. Kinda crazy but then my life at this moment is … crazy! Well, I now have an attorney who is very nice and spoke to me at length. He was impressed with everything I have done up to now and explained the different options I have. Unfortunately…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 'side effects', 4 walls and a view, asthma, chronic fatigue syndrome, Dekker, fatigue, friend, health, mold
13 Comments
determining MY course
By most people’s standards, I should be ripping mad. And maybe I should be. But something deep inside me tells me that the only person that will get hurt through my anger at the apartment complex and the management company, is me. I have chosen, instead, to forgive them and move on. After a three day hospitalization, the VA discovered that my lungs are permanently damaged. I am now on three (3) inhalers as well as a completely new medication. …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, chronic fatigue syndrome, course, determining, health, journey, life lessons, mold
29 Comments
60 things I HOLD to be TRUE
Even in the midst of this incredibly challenging situation, I have to come back to a place where I remind myself what I know to be true. In the midst of darkness and difficulty, re-focusing on the things I know to be true helps me to keep my bearings in the midst of this storm.
Feeling like a FISH out of WATER
I was once told you know a person’s true character when you watch how they respond under pressure. Well, I’m not feeling like I have much character right now. I am so …
HAPPY 4th of JULY
First, I want to wish all my readers a very wonderful 4th of July. This is truly one of my favorite holidays. Any holiday that is about America brings out my loyalty, passion and love for this country! Second…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, cognitive, fatigue, hope, mold, pain, spiders, stress, symptom
17 Comments
when Home becomes the ENEMY
I feel like I have had one post after another, lately, of difficulty after difficulty. I was so excited to know that the mold issue was going to be addressed again and the tub finally fixed. But alas, my home has now become my enemy. I awoke yesterday to a banging noise and went in to the bathroom to find out what it was and heard people downstairs talking about what they were seeing under my tub. Beside the tub …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, mold, move, symptom, toxic
24 Comments
You KNOW you have been in bed too long WHEN
I have had these popping into my head today and just couldn’t resist! So…
“Dominique’s Corner”
Is it already Friday? Seven (7) days in bed. I’m starting to get my days confused. It’s almost midnight here in Tulsa and I should be sleeping but I suddenly got hit with muscle spasms in my back and this odd muscle movement in my right leg in which the muscle just wants to keep jumping around. In addition, the restless legs kicked in again. It must be so odd for someone not familiar with these symptoms to watch this. …
What is the NUMBER in the NAME of this blog?
Weird title, huh? You’re probably wondering what gives?! Well, I have had it up to my hairline with spammers. Last week I had 300 spam messages in my comment section on ONE day that I had to delete one at a time. Today, I had 60! Enough is enough. So I have added…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "sore throat", 4 walls and a view, chronic fatigue syndrome, crash, fatigue, laughter, pain, symptom, video
12 Comments
I am BLESSED going IN and coming OUT
I guess sometimes I do look sick. My health is spiraling downward. Today was extremely hard. I actually called a friend and asked for help which is something I don’t often do. My throat is so sore that I thought ice cream would help. Plus I’ve lost my appetite. The thought of eating is just too tiring. All my lymph nodes are now painful (even the pelvis ones), I have serious ringing in my ears, fatigue is now at a …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, bad day, blessed, blog, chronic fatigue syndrome, fatigue, pain, symptom, thank you
20 Comments
CFIDS and the STRESSES of LIFE
This past week or so has been incredibly challenging for me physically, mentally and emotionally. I have chosen not to write about this period as I didn’t really want to get into the details of the stress producing situation. However, this morning, I received information on two (2) fronts that sent me into overload! As someone who lives with a chronic illness, stress can have a devastating affect on my body. And for me, today, my body was sent over …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, balance, chronic fatigue syndrome, consequences, dizziness, fatigue, friend, stress, symptom
24 Comments
Invisible Awareness
Stephen Covey once said, “I am personally convinced that one person can be a change catalyst, a “transformer” in any situation, any organization. Such an individual is yeast that can leaven an entire loaf. It requires vision, initiative, patience, respect, persistence, courage, and faith to be a transforming leader.” I have read a lot of blogs since I started my own blog on January 10th of this year. I have often been struck by…
After all these years, still trying to adjust to being ‘benched’
I knew in my gut I shouldn’t do it. I knew it was a bad fit for me. But I wanted to help out a friend. I wanted to bless her in a way that her life could become more of what she was hoping and dreaming of. But even in the midst of it, I was in a turmoil. What is it about being a Type A personality that makes me want to do it all, even when I …
He knows!
He knew. He KNEW! I was absolutely floored when I met my civilian dentist/surgeon today. He knew what CFIDS and FMS were! He KNEW! Ha! Wow! In addition, he explained Orthostatic Intolerance to me! Can you believe that! He even explained why so many doctors look at me like I have two (2) heads when I mention I have it. He said that most doctors have never witnessed an OI episode before. So when they see an episode, they assume …
Dekker, Geese, Cotton and a Birthday
I thought I had updated everyone on this last weeks many challenges but it appears I … forgot! Imagine that! I no longer have a mold problem. As a matter fact, my letter was responded to within approximately 12 hours. I was happily stunned! That also is a huge bonus for you as well as I now have had SEVERAL showers! LOL! I also have found something very important to me this past weekend …
the Art of Letting Go: Part Two
If you haven’t noticed, this week’s posts are the result of many weeks of introspection, analysis, and processing. It’s as if everything is suddenly coming together all at once. Amazing how that happens! On May 7th, I read a post on Renee’s blog, Renee’s Reflections, about her struggle with surrendering and it has been haunting me ever since! [In a good way, Renee! ] As a result I have had to confront the idea of surrendering with the new parameters …
Posted in Featured
Tagged "S.T.R.O.L.L.I.N.G.", 4 walls and a view, chronic fatigue syndrome, Fibromyalgia
14 Comments
Lost 30 pounds by making 6 switches
On January 1st, of this year, I made a decision to no longer make New Year resolutions. I have come to the place that, for me personally, these types of commitments or contracts, if you will, are more negative producing than naught. However, I had a goal I wanted to work on so I needed to determine how I would complete it. The first thing I knew I needed to do was to figure out what I would not do. …
Posted in Featured
Tagged "weight loss", 4 walls and a view, chronic fatigue syndrome, Fibromyalgia, switching
21 Comments
The Rubber Band Theory
This weekend I received the delivery of my two (2) veggie/fruit bags from Natural Farms, the co-op I joined earlier in this year. As I was putting them away, I reached down and took the thick rubber band off of one of the veggies. As I held it in my hand, it suddenly spoke to me. Well, not literally, but it did create this innate understanding deep within me. Interestingly, an issue I have been pondering and struggling with … …
Posted in Featured
Tagged "rubber band affect", 4 walls and a view, chronic fatigue syndrome, Fibromyalgia
17 Comments
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