Translator
IN MEMORY
What I’m Listening 2
Tag Archives: friend
From Empty to Full
I wanted to share something I have been going through with my readers. This may in fact be more of a woman thing but I think it really is applicable to my whole readership. I have been in a bad head and emotional space these last few months. Totally understandable with Dekker’s one year anniversary (death), my father’s sudden heart-attack and quadruple bypass, the birth of my grandson, a betrayal by someone I considered a friend and the severe relapse …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, consequences, Fibromyalgia, FMS, friend, grief, health, hope, journey, life lessons, loss, ME, Myalgic Encephalomyelitis (ME), personal, perspective, pugs, Purpose, winning
11 Comments
Learning to LIVE like a DOG
As I sit here in the early morning hours, I am transfixed by the haphazard sprinkle of lights against the black canvas of night. Silence permeats the cloak of darkness, and yet, there is this innate knowing that city life is slowly awakening to brewing pots of coffee and tea, and that a new day will soon be in full force. The melancholiness of the hour mimicks my heart as I realize that today is the one year anniversary of …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, Dekker, friend, grief, hope, journey, life lessons, loss, Myalgic Encephalomyelitis (ME), personal, perspective, pugs
18 Comments
Dec 2011 ME Story: Cusp
I have had the joy and fun of getting to know a woman on Facebook this past year or so. She has to be the most unique, creative and interesting person I have had the pleasure to friend in a long time. God only made one Cusp and she is amazing. Her ME story touched me deeply because unlike many of our stories, her story starts in her childhood. I hate this illness for adults but the devastating impact it …
Wedding and the Promise of Possibility
I finally made it to my friends wedding in Claremore yesterday and as I promised many of you, I am posting the photos here. Unfortunately I am not in them because the wedding started with out me as I was a little late. But my friend’s wedding went off without any other hitches and was lovely and she and her new husband are quite happy! It was really nice to see her so happy. My friend did capture one of …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, friend, perspective, photography, wedding
16 Comments
Allowing Illness to shape me into a better person
I was sitting on the rooftop deck this week (it would be the 11th floor) as it has become my favorite place to write … and if you can believe it … dance. Anyway, I was sitting there looking out over this expansive view and thinking about a time where everything before me would have been a barren wasteland – something called the dustbowl. Yet, as I looked out over the vast city I love I saw business thriving, beautiful …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Invisible Awareness", consequences, Fibromyalgia, FMS, friend, health, hope, journey, life lessons, ME, mold, Myalgic Encephalomyelitis (ME), personal, perspective, Purpose, relapse, winning, write
14 Comments
i CAN’T do THIS
Note: I had posted on FB that I would have a play that I wrote up for today, but I moved it to Friday. I have this deep sense that this post needed to be published today. An urgency if you will. Please accept my apologies for the change. ___________________________ Several months ago, I ran into a brick wall. Many people on Facebook probably were witness to it. The impact shattered me as if I had been physically slapped. I …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "i CAN'T do THIS", "myalgic Encephalomyelitis", 4 walls and a view, bad day, friend, grief, health, ME, personal, perspective, Purpose, relapse
18 Comments
Letter to My Family and Friends
To My family and Friends, I hope this finds you doing well. I’m writing this letter to ask for your help. As you may or may not know, my health has taken a serious down turn. Since the beginning of the year, I have been in a severe relapse as the result of having Myalgic Encephalomyelitis (ME) and am now spending 20 hours or more a day in bed. I only leave my apartment for doctor appointments and only those …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "myalgic Encephalomyelitis", friend, health, help, letter, ME, Myalgic Encephalomyelitis (ME), relapse, update
24 Comments
A Letter from a ME Survivor to Everyone Else
Note: This was a difficult post for me to write but one I needed to write. I apologize upfront if I unintentionally offend anyone. That is not my heart. Just to create a deeper understanding. This post is to those who do not have Myalgic Encephalomyelitis (ME). It is from me, but I’m guessing it is something that many who suffer with this illness would also like to say. So, in essence I guess you could say this is a …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "myalgic Encephalomyelitis", 4 walls and a view, consequences, crash, Dekker, fatigue, friend, ME, perspective, write
90 Comments
Walking thru these 4Walls
I mentioned to a friend, recently, that I would share what happened this past weekend that helped turn me around after getting the news from the doctor that going outside was now dangerous and life-threatening for me. Thus, my mask and I are now connected at the hip whenever I leave my apartment. And to be honest, I’m okay with that. Anyway, as many of you know, I have really been struggling since Thursday’s doctor appointment. As Toni and Renee …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, crash, friend, Myalgic Encephalomyelitis (ME), personal, perspective, write
18 Comments
ONLINE OPEN HOUSE WEEKEND/SATURDAY!
Well, the day has finally arrived. There were times, I thought it never would! I apologize for the lateness of my getting this up this morning but I suffered through another day of migraines yesterday and ended up going to bed at 8pm. A few months ago upnorth suggested that perhaps I could do some videos and upload them for the party. I have been working on that and am hoping that I will be able to post a few, …
What if?
My thoughts today are not directed at anybody but myself. Having said that, I have been browsing the web, reading the 40+ blogs I read almost everyday and this thought just kept coming to me over and over. The more I mulled on it, the more I realized that perhaps this was a problem I needed to look at for a myriad of reasons. Often times, I struggle trying to get those who do not suffer from ME/CFS, or similar …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "what if", 4 walls and a view, bad day, crash, family, FMS, friend, journey, Myalgic Encephalomyelitis (ME), personal, perspective
16 Comments
The Long Road Home – Part Three
Well, the last part of my story isn’t quite as fun as the first two. As a matter of fact, it was a very challenging and emotional part of the journey for me. I think – now that I have the ability to look back at what transpired – I was…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Fibromyalgia Awareness Day", 4 walls and a view, asthma, Dekker, Fibromyalgia, friend, journey, pain, stress, wedding
16 Comments
Dreams Become Reality One Choice at a Time
Time is quickly winding down and I find myself faced with only two more days before I will be heading to the airport to head to Massachusetts for my daughter’s wedding! Thus today was quite a busy day! I had a friend from church ask for my help in purchasing a new laptop and the budget was $400. So off we went to Tulsa and we ended up getting a new printer, laptop, plenty of ink, a laptop bag, and …
Next Chaper – Jewelry by Jolene
Jolene has no idea that I have chosen to name her jewelry. For me, it is symbolic of the New Chapter I am beginning – or will be beginning – on October 1st with my new home. You see, I met Jolene of Graceful Agony around January/February of this year. A few days later, I entered a contest she was having on her blog for some jewelry that she would design and make. I never dreamed that I would win…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, friend, journey, life lessons, wedding
18 Comments
Seeking FAMILIARITY and CONNECTION
I have never really given a lot of thought to the many things in my life that I am connected to that create a space of comfort, normalcy, and grounding for me until I recently lost all my possessions. Lately, however…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, friend, health, journey, life lessons
16 Comments
Book Review: Same Kind of Different as Me
Leaving This World A Better Place… I believe with everything in me that I have been put on this earth to profoundly change it. That may sound like an audacious statement, but I believe that with every ounce of my being. My one desire above all else, is to leave this world a better place than I found it by changing and impacting the lives of each and every person that I meet. Since starting my blog…
Faith, Hope and Anticipation
You know something? Today was a good day. Interesting as it was laced with several asthma attacks. The first was a result of losing our air conditioner when we lost our electric. Amazingly, it didn’t take more than 20 minutes or so before I was having the ‘asthma cough’ as I call it. My friend asked me if I was okay and if I was having problems with the asthma. I responded that I didn’t know because this is kind …
Good day with good news
I’ve been trying to figure out how to tell you what I want to tell you without telling you what I can’t tell you! I know. Kinda crazy but then my life at this moment is … crazy! Well, I now have an attorney who is very nice and spoke to me at length. He was impressed with everything I have done up to now and explained the different options I have. Unfortunately…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 'side effects', 4 walls and a view, asthma, chronic fatigue syndrome, Dekker, fatigue, friend, health, mold
13 Comments
Still searching for a way through
I actually wasn’t going to post today as I am pretty worn out. You can’t imagine how much more energy it takes to walk ‘funny’ than to walk ‘normal’! I’m absolutely floored at how exhausted I am just from walking. This weekend, I had to buy some new bedding and…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 'side effects', 4 walls and a view, fatigue, friend, kiltz, mold, symptom
20 Comments
CFIDS and the STRESSES of LIFE
This past week or so has been incredibly challenging for me physically, mentally and emotionally. I have chosen not to write about this period as I didn’t really want to get into the details of the stress producing situation. However, this morning, I received information on two (2) fronts that sent me into overload! As someone who lives with a chronic illness, stress can have a devastating affect on my body. And for me, today, my body was sent over …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, balance, chronic fatigue syndrome, consequences, dizziness, fatigue, friend, stress, symptom
24 Comments
FOUR life-lessons my PUGS taught ME
The view out my window is lovely today. The water looks blue (and that doesn’t happen all too often as the Arkansas river is muddy water!) and the sky has this woven pattern of pale blue and white ribbons. The snow is almost gone and the wildlife on the bird sanctuary in the middle of the river are fluttering about, busy with the days business. There’s even a lone individual trying to catch tonight’s dinner! On my window sill sits …
Running into PERSPECTIVE
As I prepare to write my post for today, I find my mind constantly drifting to the 7.0 earthquake that hit Haiti. A recent commenter on my blog wrote that reading that particular day in my life was like running into perspective. Well, perspective happens for me as well. I realize to many people that my life may seem very difficult, if not impossible. But I have come to understand that while I may have it worse off than some, …
The Spoon Theory
I sit here in the early hours of the day, sipping a cup of my favorite tea from England - PG Tips – while Dekker lies comfortably snuggled up on my lap, quietly snoring away. As I look out the window of my view, fog has blanketed our fair city. Although night has given rise to morning, morning has found herself cloaked in a heavy, gray blanket that has wrapped itself around her. Lights peek through the haze, alerting me …
MY New Year’s MISTAKE
If you think launching a brand new blog is a lot of pressure, you would be right. But imagine if you started getting emails and comments about how people are looking forward to your launch and can’t wait. Now that is pressure! But then again, I am always up to a challenge, so here goes! Because of the incredible interest in this blog, I have been pondering what to write for my first post. I was going back and forth …
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