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IN MEMORY
What I’m Listening 2
Tag Archives: “Invisible Awareness”
Allowing Illness to shape me into a better person
I was sitting on the rooftop deck this week (it would be the 11th floor) as it has become my favorite place to write … and if you can believe it … dance. Anyway, I was sitting there looking out over this expansive view and thinking about a time where everything before me would have been a barren wasteland – something called the dustbowl. Yet, as I looked out over the vast city I love I saw business thriving, beautiful …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Invisible Awareness", consequences, Fibromyalgia, FMS, friend, health, hope, journey, life lessons, ME, mold, Myalgic Encephalomyelitis (ME), personal, perspective, Purpose, relapse, winning, write
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April 2011 ME Story: Gail
Wow! We are onto our 3rd ME story! Time sure does fly! This months story is by Gail, author of the blog, MyWorld. Here is an excerpt of her wonderful story. My story about Myalgic Encephalomyelitis (M.E.) or Chronic Fatigue Syndrome (CFS) in 2002, back when I was in my early thirties. Following University I worked for eight years as a wilderness educator. For six years I worked for an organization called Outward Bound (in England for a year then …
March 2011 ME Story: Toni Bernhard
Today marks the second ME/CFS story being shared onBecoming VISIBLE 4ME by author, Toni Bernhard. Toni is the author of, How to Be Sick, and she has been dealing with the challenges of living with ME/CFS for a long time. As a Buddist, she has learned how to incorporate her faith into her life in order to come to terms with a difficult hand that was dealt her. Here is an excerpt of her story for your perusal. In the …
Life is kinder but ME is still kicking my butt!
I’m nicely ensconced back in my apartment, thankfully. As a result of this relapse, I have moved my bed into the living room temporarily. I figure it is 20+ steps less that I have to take to go into the kitchen so that can only help. On Sunday, I actually thought the relapse might be easing a bit as the morning was the best I have had in weeks. But I crashed like a bull in a china shop in …
Invisible Awareness Launch an Incredible Success!
Holy Cow! I had hoped the launch of Invisible Awareness would be a success, but it surpassed even what I had imagined it might be able to do! The stats that came in just left me gobsmacked. By the end of the day 820 people had visited either, 4Walls and AView or Invisible Awareness, to read Laurel’s story. That is 180 people shy of 1,000! And, that is only on my blog and Invisible Awareness. That does not include all …
Feb 2011 ME Story: Laurel
Well, Invisible Awareness is now an official organization! Woo Hoo. It has taken almost a year to bring it to fruition, but now I have! I’m excited to share our first story – Laurel’s story – on the site. Laurel, for those who don’t know her, is bed bound and has been so for the past 10 years. She is unable to stand, shower, walk, and cannot speak above a whisper. Nor can she also cannot speak for more than …
Invisible Awareness Launch REMINDER!
I just wanted to take a quick minute and remind everyone that Invisible Awareness dot org launches at midnight tonight! We will be launching with Laurel’s story so when you have a chance tomorrow, please go by Invisible Awareness dot org and copy and paste a few paragraphs of her story onto your blog and let’s spend the day sharing away. Also, please don’t forget to add a link to Invisible Awareness dot org at the end of your post. …
I could use YOUR help
I have been working on designing the invisibleawareness.org website and am now on my third re-do! Unfortunately, that is how my creative juices work. I do it over and over until I figure out what it is that I want. Well, late last tonight it hit me. I had this amazing idea. Just one little problem, however. I can’t make it happen without your help. What I am trying to do (this rocks) is create a background mural, if you …
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Invisible Awareness", help, invisibleawareness.org, M.E./CFS, photography
18 Comments
Invisible Awareness
Stephen Covey once said, “I am personally convinced that one person can be a change catalyst, a “transformer” in any situation, any organization. Such an individual is yeast that can leaven an entire loaf. It requires vision, initiative, patience, respect, persistence, courage, and faith to be a transforming leader.” I have read a lot of blogs since I started my own blog on January 10th of this year. I have often been struck by…
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