Tag Archives: Invisible
A Glimpse of Severe ME: Opening the Door
When I started this blog, I started with the premise that I would share with brutal honesty what ME (CFS) is really like. Today, I thought it important enough to break my self-imposed 5-day withdrawal and shielding to reveal once again the devastation of severe ME. First, from this day forward, I will no longer refer to this illness as Chronic Fatigue Syndrome (CFS). That is an hypocritical joke. This is not fatigue, chronic or otherwise. Second, I am angry. …
Our ILLNESS is invisible, but WE are not
I know, intimately, how these illnesses affect my life every day. I live it every moment of every day. I suffer from its devastating effects every time it whimsically determines that today is the day it will knock me to my knees. I endure its relentless attacks over and over and have done so for over 20 years. I grow frustrated some days as to how people without either of these illnesses struggle for the smallest nugget of understanding. I …
























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