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IN MEMORY
What I’m Listening 2
Tag Archives: pain
DIET is KEY
After living with ME since December 1992, I have learned over and over that when I make any plans I must also plan for the payback that will undoubtedly come. That may sound like I’m being negative because I’m planning for the crash that follows the fun but it really isn’t. It is just a fact of life, unfortunately, when one lives with this unrelenting illness. I had a wonderful time helping my sister get her new website ready and …
Navigating a Week full of a Myriad of Emotions.
I often find that life offers me many opportunities to become a better me, if you will. This week is no exception. With the news that has been slowly trickling out about WPI (the Whittemore Peterson Institute who researches neuroimmune illnesses) and Judy (a major player in ME research), this week did not start on the best foot. Then the news came of two deaths within the ME Community and for me that has just had me grieving all over …
PUSHING is NO Longer an Option. Take ALTERNATIVE Route!
For years, I have been told to push and collapse. To be honest, I had never heard of pacing until I started writing about my 4Walls and AView. Pacing was never a concept that was ever put before me. So I have spent every day since December 1992 pushing and collapsing and being applauded by doctors, specialists, professionals, etc. What I understand today, however, is that there comes a time in this illness when pushing is no longer an option …
Defining Progress in Severe ME: Part 2: Living in Black and White
If you had asked me a year ago, ten years ago, or even two decades ago if I ever thought that Myalgic Encephalomyelitis (M.E.) would cause me to flee into the dark, I would have responded with a resounding, “No.” Today, I know that I would have been wrong … very wrong. Since January of 2011 I have been adapting to a life void of color. It is one that has now become eerily reminiscent to my beloved hobby: black …
lessons I learned from a woman with autism
Sometimes life’s lessons come unexpectedly, and from places we could never imagine, such as books, movies – or even, a woman with autism. As you are well aware as a reader of my blog, I have been overcome with grief at having to have my beloved pug, Dekker Black, put to sleep. These past seven years were filled with a companionship I never truly understood until he was gone. While I knew the decision was right for Dekker, it is …
Clarifying M.E./CFS fatigue in ONE word
Well, it’s official. I am in the throws of a crash. I’m having chills, increased pain levels and utter exhaustion. I am able to sleep about five hours a night now but I toss and turn a lot and then am usually wide awake at 7 or 8. Today, I opened my eyes and knew I was not going to get out of bed. Thankfully, I actually fell back to sleep and slept until 11. I got up and made …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, crash, fatigue, mono, Myalgic Encephalomyelitis (ME), pain
19 Comments
Determined to turn IT all around
The discussion of our (Chronic illness sufferers) relationship with our doctors has popped up throughout the web today on blogs as well as on Facebook. As a sufferer of a chronic illness (two in fact) that has mystified the science world, medical world and our government for decades, the doctor / patient relationship continues to prove to be the most challenging of all our relationships. As I mentioned yesterday…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, chronic fatigue syndrome, determined, doctors, Fibromyalgia, flare-up, health, medication, pain, RADS, symptom
19 Comments
Lung Doctor Visit
Since I am not up to writing a post today, I wanted to make sure and let you all know I’m okay. I am, however, totally wiped out from taking a van and a bus to Muskogee (one hour away), spending the whole day at the VA, and then taking a van and bus to get home. On the positive side, I received some good news. Woo Hoo! However…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, Fibromyalgia, health, lungs, pain, R.A.D.S., Reactive Airway Disease, rest, sleep
2 Comments
The Long Road Home – Part Three
Well, the last part of my story isn’t quite as fun as the first two. As a matter of fact, it was a very challenging and emotional part of the journey for me. I think – now that I have the ability to look back at what transpired – I was…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "Fibromyalgia Awareness Day", 4 walls and a view, asthma, Dekker, Fibromyalgia, friend, journey, pain, stress, wedding
16 Comments
The Long Road Home – Part two
Well, as you know, I flew out to Massachusetts. That is something I will never do in the future again! I had breathing problems on both flights and had to use my emergency inhaler like it was oxygen! I cannot tell you how awful it feels to be…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, asthma, family, fatigue, Fibromyalgia, grand-daugher, journey, pain, photography, wedding
18 Comments
Turning the Corner
I thought I would update you all on the after-effects of the chemical poisoning. There is good news and then there is some not so good news. On the good news front, my gait is much better. I still have problems with my balance but if I am just walking around the house for short durations I am pretty much back to normal. It appears the detox herbs my natural doctor suggested are working. On the flip side…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "turning the corner", 4 walls and a view, asthma, fatigue, health, herbs, hope, pain, stress, symptom
12 Comments
HAPPY 4th of JULY
First, I want to wish all my readers a very wonderful 4th of July. This is truly one of my favorite holidays. Any holiday that is about America brings out my loyalty, passion and love for this country! Second…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, cognitive, fatigue, hope, mold, pain, spiders, stress, symptom
17 Comments
Today’s Lesson
Today has been quite a surreal one. I actually felt better today and only had a few ‘spiders’ crawling on me. I was all ready to write my column and get it done (I have it scratched out in long hand) when I came to my blog to quickly respond to the comments on my blog only to discover that the grey theme had a glitch in it that I couldn’t fix. Sigh… So…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, life lessons, pain, perspective, spiders, symptom
24 Comments
“Dominique’s Corner”
Is it already Friday? Seven (7) days in bed. I’m starting to get my days confused. It’s almost midnight here in Tulsa and I should be sleeping but I suddenly got hit with muscle spasms in my back and this odd muscle movement in my right leg in which the muscle just wants to keep jumping around. In addition, the restless legs kicked in again. It must be so odd for someone not familiar with these symptoms to watch this. …
What is the NUMBER in the NAME of this blog?
Weird title, huh? You’re probably wondering what gives?! Well, I have had it up to my hairline with spammers. Last week I had 300 spam messages in my comment section on ONE day that I had to delete one at a time. Today, I had 60! Enough is enough. So I have added…
Posted in Myalgic Encephalomyelitis (ME)
Tagged "sore throat", 4 walls and a view, chronic fatigue syndrome, crash, fatigue, laughter, pain, symptom, video
12 Comments
I am BLESSED going IN and coming OUT
I guess sometimes I do look sick. My health is spiraling downward. Today was extremely hard. I actually called a friend and asked for help which is something I don’t often do. My throat is so sore that I thought ice cream would help. Plus I’ve lost my appetite. The thought of eating is just too tiring. All my lymph nodes are now painful (even the pelvis ones), I have serious ringing in my ears, fatigue is now at a …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, bad day, blessed, blog, chronic fatigue syndrome, fatigue, pain, symptom, thank you
20 Comments
A sure way to forget FMS pain
I realize a post on Sunday is out of the norm for me, but I felt like writing so… I discovered a way to overcome my Fibromyalgia pain! Really! And it works 100%. Develop a severe abscess in one of your teeth. That pain will make you forget any other pain in a nano second! Phew! Today I got to spend my day at the hospital…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, Fibromyalgia, pain, personal, pug, tooth ache
16 Comments
My journey from drugs to herbs – Part Two
If you didn’t catch Part One of My journey from drugs to herbs, you might want to read the post in order to understand how I got to this point. You can go here if you would like to read it first. I have given a lot of thought as to how I should cover all the herbs I take and I decided to break them up by symptoms. I will be covering five (5) categories that I take herbs …
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, earthturns, Fibromyalgia, iherb, pain, sleep
11 Comments
My butt?
I’m assuming most of my readers have never sighted a gun, so I will explain what that means. In order to shoot your target – and hit it – if your are using a scope, you have to sight it, which basically means you have to calibrate it so that the bullet will go straight. I had to learn how to do this in basic training and learned real quick what happens when…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, fatigue, Fibromyalgia, pain
4 Comments
Oh shoot, I’m awake
I woke up this morning and within seconds I knew it was not a good morning. Usually when I awaken the first thing that I find myself saying is, Thank you, Lord, for another day. This morning didn’t quite go that way. I awoke with a major disconnect between…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, Fibromyalgia, pain, personal
8 Comments
Surprise payback
Today I awoke to incredible pain. On a scale of 1 – 10, I am at a 9. I have spent most of the day in bed, taking very hot baths, using heating pads, taking extra Phenocane and whatnot. Despite that, I still couldn’t get the pain under control. It is days like this – the ones that sneak up on me – that are quite challenging for me. I don’t do pain well…
Posted in Myalgic Encephalomyelitis (ME)
Tagged 4 walls and a view, chronic fatigue syndrome, Fibromyalgia, pain, payback, personal
26 Comments
The dreaded 10 day…
I wish you could have seen my view tonight. The sky was this incredible teal color as night was falling. Stunning! Unfortunately, today is the dreaded 10 day. Today is a horrible day. I have been sitting here for about 30 minutes trying to figure out if I could sit up long enough to write today’s post. I find if I hold my head to the side – it’s just too heavy today to hold straight up - and sit …
To be (in pain) or not to be
Well…today is a better day. I am always thankful for those “new mercies” when they arrive. As I sit here looking out beyond my 4Walls at my incredible view, I am thankful that even when I am unable to spend much time outside, I have a beautiful view to look at and keep me company. Yesterday, I read through all my journals since 1992. I have been writing in some form or fashion for as long as I can remember …
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