From a Brain Scan 2 a Seizure 2 a Break

I finally was able to make it through the MRI with the help of valium.  However, it was extremely difficult.  I had to have 13 sessions (this is what each part of the MRI is called and they range from 2-4 minutes each) because we discovered the nose band in … Continue reading

Letter to My Family and Friends

To My family and Friends, I hope this finds you doing well. I’m writing this letter to ask for your help. As you may or may not know, my health has taken a serious down turn. Since the beginning of the year, I have been in a severe relapse as … Continue reading

Finding Solace from the Constant ME Onslaught

My week literally fell apart and I broke. I am noticing so many of us are enduring great challenges with our illness and bodies.  Many of us are struggling with enduring.  I, too, have been struggling.  While I want to share where I am today with you, please don’t hear … Continue reading

The Gift ME gave me

As many of my readers know, I have a set of core beliefs, convictions that have undergirded me in my journey with ME.  Without them, I am not sure that I would have survived ME for these past two decades. One of those core beliefs is that I have been … Continue reading

April 2011 ME Story: Gail

Wow!  We are onto our 3rd ME story!  Time sure does fly! This months story is by Gail, author of the blog, MyWorld.  Here is an excerpt of her wonderful story. My story about Myalgic Encephalomyelitis (M.E.) or Chronic Fatigue Syndrome (CFS) in 2002, back when I was in my … Continue reading

There is another side of, A Letter From a ME Survivor to Everyone Else.

I had planned to segue into something different today, but the response to my letter was so huge that it just doesn’t feel right to move on yet. First, I want to thank each and every person who took the time to comment and share their perspective and stories on … Continue reading

A Letter from a ME Survivor to Everyone Else

Note:  This was a difficult post for me to write but one I needed to write.  I apologize upfront if I unintentionally offend anyone.  That is not my heart.  Just to create a deeper understanding. This post is to those who do not have Myalgic Encephalomyelitis (ME).  It is from … Continue reading